tag:blogger.com,1999:blog-1862482227481252146.post2866194541587085422..comments2023-11-29T00:51:03.327-08:00Comments on Bela Girl: Bela's tube feeding journeyAveryhttp://www.blogger.com/profile/13084175205468677249noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-1862482227481252146.post-39809916429207813052010-11-17T20:45:45.845-08:002010-11-17T20:45:45.845-08:00Wow! I know I have missed so much because we stin...Wow! I know I have missed so much because we stink at being friends (!!!!) but this is huge!!!!!! I feel like I should come over bearing gifts or something?!?!?! Can I?Dallas and Kristahttps://www.blogger.com/profile/13489914262162430374noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-80503184362070531272010-10-28T00:08:43.153-07:002010-10-28T00:08:43.153-07:00Oh my goodness!! I totally had chills reading this...Oh my goodness!! I totally had chills reading this post. I may have even started to cry. I think only a mom who has tube fed their baby can truly appreciate the sucess of being done. It is so freeing!!<br /><br />I am so excited for you! When i get done commenting I am going to do a happy dance! <br /><br />I love that she took it out herself and cheered as well. That is adorable. <br /><br />Go Bela go! TUBE FREE! Yay... seriously... i am so happy!Mimihttps://www.blogger.com/profile/16195768045522249870noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-91410847043623939962010-10-15T17:58:05.257-07:002010-10-15T17:58:05.257-07:00A friend sent me a link to this post - I also had ...A friend sent me a link to this post - I also had a g-tube baby (now 4 years old!) He has Down syndrome, had several surgeries in his first few months and long, long hospital stays (as you can well picture). He couldn't coordinate himself to eat(drink) and it was concluded that before we could take him home, he would need a g-tube. He never could bottle feed and got all his liquid feedings via tube, but as he worked on solids, then drinking from sippy cups, he got better and better. Then about two years ago (when he was 2 1/2), we stopped using it regularly, then by February 2009 it was gone completely! I understand your elation!<br /><br />He did have to have another outpatient surgery to completely close up the hole since it leaked a tiny bit, but that was no big deal. I forget sometimes that we had it - had it for 2 1/2 years and now it's been 2 years without it! I don't know many people that understand the whole g-tube thing, so it's interesting when I read another mother's account! <br /><br />Good for you and your Bela!Katyhttps://www.blogger.com/profile/13428076924406279841noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-36924433789690296402010-10-11T12:09:28.630-07:002010-10-11T12:09:28.630-07:00So very excited for you, for Bela and for a health...So very excited for you, for Bela and for a healthy pregnancy!! Hope all is well! We all think about you guys often! Miss you! XOJeanette Lefrandthttps://www.blogger.com/profile/03396470006223170091noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-29202791897204659132010-10-09T20:24:50.170-07:002010-10-09T20:24:50.170-07:00That's AWESOME news Avery! Good luck with all...That's AWESOME news Avery! Good luck with all these new changes!Sarahhttps://www.blogger.com/profile/08057067555973973538noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-36726543658559416332010-10-08T18:43:53.090-07:002010-10-08T18:43:53.090-07:00That is SO SO great! I am so happy for you, and ha...That is SO SO great! I am so happy for you, and happy that Bela Made that choice for you! :) I hope she continues to do well eating "normal" food! :) Congrats!!Dennison Familyhttps://www.blogger.com/profile/00794492553549094178noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-14518091306374251222010-10-08T16:56:11.485-07:002010-10-08T16:56:11.485-07:00My husband's cousin sent me a link to this pos...My husband's cousin sent me a link to this post and said I should read it and I'm glad I did. I've read your blog from time to time when I've needed to know that life with a feeding tube does get better. I guess it can't get much better than getting rid of it, right? :) My daughter had an NG tube for 6 1/2 MISERABLE months and has had her G tube for 2 months now and some days (like today) it's hard to believe that she'll ever eat, so I'm happy for you & Bela and glad to see that it gets better!Brandishttps://www.blogger.com/profile/16012190454446419189noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-91320057096223957412010-10-08T14:34:53.857-07:002010-10-08T14:34:53.857-07:00Hooray for Bela!!! Seriously, what a blessing it ...Hooray for Bela!!! Seriously, what a blessing it would be to be DONE with tube feeding stuff well before your new baby comes. Tender mercy indeed.Matt and Jennae Porterhttps://www.blogger.com/profile/10351852172869810980noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-22092644044609961292010-10-07T12:00:49.665-07:002010-10-07T12:00:49.665-07:00this is seriously the best news!
we cannot wait ...this is seriously the best news! <br /><br />we cannot wait to see you guys this weekend!Lahttps://www.blogger.com/profile/08342640414949437060noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-13272800494117948072010-10-05T23:01:00.445-07:002010-10-05T23:01:00.445-07:00No way! This is the best news ever! That is just...No way! This is the best news ever! That is just another one of her little miracles. Sweet girl! Good thing Halloween is coming so she can get those calories...ok...just kidding. I'm so happy for you and her.Sally Jensen Interiorshttps://www.blogger.com/profile/15384971408328372673noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-70108672462864797132010-10-05T15:27:34.907-07:002010-10-05T15:27:34.907-07:00This is unbelievable. I am so happy for you guys....This is unbelievable. I am so happy for you guys. What a special little blessing you have. I can't even believe how that happened.. it's just amazing.Lindsay Brummerhttps://www.blogger.com/profile/12408901714061550198noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-1093384309722831062010-10-05T12:34:57.334-07:002010-10-05T12:34:57.334-07:00Oh my goodness so exciting!! That is such a bless...Oh my goodness so exciting!! That is such a blessing, and I love that it just came out (somehow??) on it's own. It definitely made it an easy decision for sure! Hopefully her eating will just get better and better.Auburnhttps://www.blogger.com/profile/12224742197797528100noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-12988984267145658742010-10-05T12:34:56.763-07:002010-10-05T12:34:56.763-07:00Yay Bela! I'm so happy for you guys Avery. I...Yay Bela! I'm so happy for you guys Avery. I know how much of a trial that tube has been on you. Here's praying for a nice full belly from here on out :)Nicolehttps://www.blogger.com/profile/15020299029938316216noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-16236880639240768302010-10-05T12:29:14.479-07:002010-10-05T12:29:14.479-07:00SMILING from ear to ear!! I hope that will be Owe...SMILING from ear to ear!! I hope that will be Owen one day soon. He LOVES to eat, but just can't get the skill down. I had given up for a while to work on his gross motor skills, but now he knows how to walk, I'm back to working on food. How did the clinic in Tucson go? After Owen's (hopefully) Fontan, our goal is to be tube free too!!<br /><br />HOORAY BELA!!The Simmons Familyhttps://www.blogger.com/profile/14206401418544523378noreply@blogger.comtag:blogger.com,1999:blog-1862482227481252146.post-25840266926990093472010-10-05T10:57:37.173-07:002010-10-05T10:57:37.173-07:00We are all cheering for you. Such a huge thing. ...We are all cheering for you. Such a huge thing. This is a such wonderful gift. A tender mercy. Yeah!!!Mickie & Carlnoreply@blogger.com