Bela Girl

Thank you to all of you who have been worrying about Bela lately... I havn't even posted about her last apt yet just because things have been so busy. My mom was visiting last week from Brazil and it was so good to spend time with her. Anyway, the echo last week showed no change, not any worse, but not any better. So we're not really sure why the sudden increase in leakage, and the medication didn't seem to make much difference. They decided not to do a cath right now however, but if the leaking gets even a tiny bit worse they'll have to do one. So we're just watching it now.. Getting an echo and watching elmo My big girl getting her blood pressure taken...It is her least favorite thing at her appointments. We've scheduled a consultation with the surgeon that will place Bela's G-tube for March 3rd, so hopefully that actual procedure will follow shortly. Bela now claws at her face to get the NG tube out at night...she wakes up with big nail marks on he...

Baby Jake passed away last night.. Please say a prayer for his family today... Thank you!

So this was posted on my sister-in-laws blog the other day and I just got around to reading it. It is hilarious and so true! To all my friends out there that hear from me way too little...I still love you DEARLY!!

I'm a little behind in posting about Thursdays apt.. It was okay. Her echo didn't look as great as it has been since her surgery... darn. I got so used to hearing that her heart function was looking great that it stunk to hear they saw something that concerned them. Her valve is leaking more, it has always been mildly leaky, but it was moderately leaky during the echo. Her pulses were still great, but the echo's don't lie.. So they've increased her blood pressure medication in hopes that it will take care of the leaking. We have to go back in 9 days for another echo to check it. If it is still leaky, we have to do a cath. We weren't planning on a cath until she was like 2, so that was kinda dissapointing to hear. But it's not for sure yet.. we're hoping the meds take care of it for now and we can hold off on the cath. The last couple of days she has been a little sleepier than usual and not eating as good. Maybe it's just me being worried, ...