Bela Girl

The night after surgery.. all smiles with the help of a little morphine.. :) She pulled her pulse ox off about 50 times.. setting off the monitors everytime.. it was her favorite thing to do. Tube free and loving it! This pic was actually taken before the button...see how well her cheek has cleared up!

Thank you for all the sweet comments on our last post!! The last couple days have been rough for Bela, but what kept me positive was knowing how much better this will make her life! She left for the OR room in the nurses arms looking over her shoulder at me saying 'mama, mama' and crying. Wow, I thought it was hard before, but hearing mama almost ripped out my heart! The waiting was hard, always is..not near as hard as her open heart surgeries, but still hard. After 2 hours we went up to her room to see her and she was screaming! Boy was she not happy. So they gave her a shot of morphine and she relaxed a little. The rest of that day was rough for her though... Eleven pokes to get in ONE darn IV! Getting in an IV is so darn hard for Bela! And she hadn't eaten since 9 o'clock the night before and couldn't eat until 8! Poor little thing.. After a miserable day she finally went to sleep around 9:30 and slept pretty good at night. She woke up a couple times in...

Bela is ONE!! Everytime I think about it, I can't help but get emotional.. Over the last couple of months, there have been some really difficult things happening among our little heart friends. My heart goes out to the families of the many precious babies that have gone back to heaven recently, and the countless others who have been going through very hard situations. We pray for them constantly. I have to admit that I am sometimes terrified knowing that any given day something can happen that sends you spiriling down a very scary path. The last six months have been very good to us, and we count our blessings everyday. I cannot believe that I have an active, spunky, happy, and squirmy little one year old. I'm in awe... getting help to blow out the candle.. just a little taste of the cake It's been a crazy year, but I can honestly say it's been the best year of my life. Friday we got to celebrate with a party, and Saturday we were able to walk in the heart walk with ...

This is one of the hardest posts I have ever had to write. Today Gracie Gledhill will go back to heaven. Her family is going to turn off her life support and say goodbye to her. She is 11 months old and is a light in this world.. We've been so touched to be a part of her story. She went in for her second surgery but they found out it would be too risky for her. So she was put on the transplant list. Three days later, a heart for Gracie came but after transplatation, it turned out that she had gotten a bad heart, and they have no other options for her. I cannot begin to imagine what saying goodbye to their baby after 11 months will be like. Join us in saying (many) prayers today that her mommy and daddy, brothers, and sister might feel strength, peace, and courage as they send her back home... To view her blog click here: Gracie