Saturday, March 7, 2009

Button

Thank you for all the sweet comments on our last post!! The last couple days have been rough for Bela, but what kept me positive was knowing how much better this will make her life! She left for the OR room in the nurses arms looking over her shoulder at me saying 'mama, mama' and crying. Wow, I thought it was hard before, but hearing mama almost ripped out my heart! The waiting was hard, always is..not near as hard as her open heart surgeries, but still hard. After 2 hours we went up to her room to see her and she was screaming! Boy was she not happy. So they gave her a shot of morphine and she relaxed a little. The rest of that day was rough for her though... Eleven pokes to get in ONE darn IV! Getting in an IV is so darn hard for Bela! And she hadn't eaten since 9 o'clock the night before and couldn't eat until 8! Poor little thing.. After a miserable day she finally went to sleep around 9:30 and slept pretty good at night. She woke up a couple times in pain and because of monitors, but she tolerated her food all night long which was great! She was already feeling better in the morning and we got the go ahead to go home! I love quick, uncomplicated stays! She slept most of the day yesterday and went back to sleep today after being up for an hour. I'm so glad she's sleeping and keeping her food down. Hopefully by next week she'll be back to herself. Having the tube out is going to be so good for her little nose. Her congestion has already cleared up! It's amazing what the tube was doing to her nose and cheeks...no more constant congestion, bloody noses, and open sores on her cheeks. I'm so excited to have her face back!!
How grateful we are that we were just there for a gtube placement. Being there is so hard to see so many very sick babies, it brought back a lot of emotions. We are SO incredibly blessed!

18 comments:

The Simmons Family said...

HORRAY for the G Button! I'm thinking that will be our next step post transplant.

I'm so sorry Bela had a rough time with IV pokes, starvation and the worst... crying for her "ma ma" as she went to the OR! Isn't it brutal!! I'm hoping her 11 pokes were done in the OR after she was zonked... poor baby.

Is only gets harder the older they get. I am petrified about the whole transplant journey... but excited to know that someday.. his heart won't be broken anymore.

Avery.. I need to email you... I was wondering if Bela qualified for AZ Long Term Care?! We're applying now, but Owen never qualified for DDD, so I never knew it was an option. I'll email you!

emcghee said...

Ave, I'm so glad you are home and she is recovering. That should be wonderful not having to deal with that tube down her poor nose and throat. I think of you guys often.

AL and ALI said...

Yay! I'm glad it went smoothly.

Dana said...

I am so happy to hear that all went well and you are back home and Bela is recovering and getting some sleep!

Dennison Family said...

I'm so glad Bela did so great and that you only had to stay 1 night!! How nice is that!! I'm glad you will have your sweet baby's face again!!

Lindsay Dean said...

Praying that this does wonders for our little Bela boo. Always thinking of you.....
Love, Suzie and Lindsay!

lundgrenville said...

Yay for Sweet Bela!
We are all so proud Bela that you are keeping your food in your belly. You have been given mom and dad a hard time...so this is so good! Thank you little miss!
I hope all goes well these next couple of days. We pray for you...all of you!
Goodnight Bela & sleep tight!
Hugs-

Staci said...

We're so glad she doing better.

Wendy said...

Congratulations Bela! That's so exciting. I'm so happy that the procedure is over and she's home. It sounds like things are getting much better for you guys...yea!!!

The Silly Nilly Family said...

I can only imagine how hard that must have been to hear her saying "Mama, Mama...". That just tears at the heart! Love you guys.

The Joslyn Family said...

Happy Birthday to Bela! What a great celebration! And she looked as cute as ever. I'm so glad she is able to get the tube out. I hope she recovers fast. Glad to see you guys doing well.

Evie's Story said...

Praying this makes such a difference for the little princess!
Heart hugs
Evie & Mandy

Susie Q said...

Yeah! Welcome to life with the g-tube. It's a whole new world and it's a great one, especially compared to the "lovely" NG tube. We have loved most things about Brynlyn's g-tube and of course have our moments, but this will be so great for Bela and for you. I'm so excited for you guys.

Aagh, my heart hurt about the story of her crying "mama" before the surgery. It just rips your heart out, I do recall Brynlyn's second heart surgery, as the nurses walked away carrying her and she waved her little hand to me to say "bye". I went into the nearest bathroom and sobbed for the next 20 minutes. I think you're right that it does get harder as they get older.

Bela looks great and she is such a darling sweetheart. You guys are awesome. Hang in there and good luck with the button!!!!

Susie and family

lundgrenville said...

Just thinking about you and wondering how that button is. Hope all is well with your sweet Bela. Thoughts and prayers always!
Hugs-

Mimi said...

I'm so happy that it all went so well. Good luck with the recovery and give her lots of kisses from us. I also can't believe she is one! Happy Birthday sweet girl!!! Her B-day cake was darling!

Victoria said...

Avery, I hope this will make life better for you all! This post made me cry :(

The Mason Family said...

Hi Avery...First of all I want to say that I'm so glad that Bela's G-tube surgery went well...now for the weight gain!

I also wanted to bring to your attention an article that was emailed to me...I immediately thought of you. Even though the article is more about the doctor, it does touch on a little girl born with HLHS and TS... http://www.hollandsentinel.com/lifestyle/x2081096437/Holland-native-performs-treatment-on-high-risk-newborn-at-U-M

Hope all is well...

Shannon
Mommy to Carlie (HRHS:TA)

Kara said...

It looks so great to see pictures without tubes! She looks so happy.