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Thank you for all the sweet comments on our last post!! The last couple days have been rough for Bela, but what kept me positive was knowing how much better this will make her life! She left for the OR room in the nurses arms looking over her shoulder at me saying 'mama, mama' and crying. Wow, I thought it was hard before, but hearing mama almost ripped out my heart! The waiting was hard, always is..not near as hard as her open heart surgeries, but still hard. After 2 hours we went up to her room to see her and she was screaming! Boy was she not happy. So they gave her a shot of morphine and she relaxed a little. The rest of that day was rough for her though... Eleven pokes to get in ONE darn IV! Getting in an IV is so darn hard for Bela! And she hadn't eaten since 9 o'clock the night before and couldn't eat until 8! Poor little thing.. After a miserable day she finally went to sleep around 9:30 and slept pretty good at night. She woke up a couple times in pain and because of monitors, but she tolerated her food all night long which was great! She was already feeling better in the morning and we got the go ahead to go home! I love quick, uncomplicated stays! She slept most of the day yesterday and went back to sleep today after being up for an hour. I'm so glad she's sleeping and keeping her food down. Hopefully by next week she'll be back to herself. Having the tube out is going to be so good for her little nose. Her congestion has already cleared up! It's amazing what the tube was doing to her nose and cheeks...no more constant congestion, bloody noses, and open sores on her cheeks. I'm so excited to have her face back!!
How grateful we are that we were just there for a gtube placement. Being there is so hard to see so many very sick babies, it brought back a lot of emotions. We are SO incredibly blessed!
How grateful we are that we were just there for a gtube placement. Being there is so hard to see so many very sick babies, it brought back a lot of emotions. We are SO incredibly blessed!
Comments
I'm so sorry Bela had a rough time with IV pokes, starvation and the worst... crying for her "ma ma" as she went to the OR! Isn't it brutal!! I'm hoping her 11 pokes were done in the OR after she was zonked... poor baby.
Is only gets harder the older they get. I am petrified about the whole transplant journey... but excited to know that someday.. his heart won't be broken anymore.
Avery.. I need to email you... I was wondering if Bela qualified for AZ Long Term Care?! We're applying now, but Owen never qualified for DDD, so I never knew it was an option. I'll email you!
Love, Suzie and Lindsay!
We are all so proud Bela that you are keeping your food in your belly. You have been given mom and dad a hard time...so this is so good! Thank you little miss!
I hope all goes well these next couple of days. We pray for you...all of you!
Goodnight Bela & sleep tight!
Hugs-
Heart hugs
Evie & Mandy
Aagh, my heart hurt about the story of her crying "mama" before the surgery. It just rips your heart out, I do recall Brynlyn's second heart surgery, as the nurses walked away carrying her and she waved her little hand to me to say "bye". I went into the nearest bathroom and sobbed for the next 20 minutes. I think you're right that it does get harder as they get older.
Bela looks great and she is such a darling sweetheart. You guys are awesome. Hang in there and good luck with the button!!!!
Susie and family
Hugs-
I also wanted to bring to your attention an article that was emailed to me...I immediately thought of you. Even though the article is more about the doctor, it does touch on a little girl born with HLHS and TS... http://www.hollandsentinel.com/lifestyle/x2081096437/Holland-native-performs-treatment-on-high-risk-newborn-at-U-M
Hope all is well...
Shannon
Mommy to Carlie (HRHS:TA)