Thursday, July 16, 2009

Since we've been home...

Bela has been SICK. It's been so long and I forgot how much I hate seeing her suffer.. She's been sick for almost two weeks now, and yesterday it just got so much worse. Vomiting 24/7, exhausted but can't stay asleep, congestion, fever, u name it. She has another bad ear infection on top of something else viral. So took her in today for a shot of antibiotic to try to speedily get her feeling better. It was a long dr.'s visit, and for some reason I decided to have a breakdown during the shot portion (and awhile after it too). I hate when the nurse tells me to hold her down good because it's a really big needle and it'll probably hurt her a lot. And then to watch her for wierd breathing, which I thought was scary enough, but then she adds apnea (periods of no breathing). I'll take wierd breathing, thanks. Or rash all over her body or her leg swelling up. So that coupled with her incessant crying, 3 hours of sleep the last three nights, I just had a cry. The worst part is I have to go back the next two days and do the same thing! Poor girlie.
So she's tucked in her bed, compltletly zonked out, with continous feeds going that I HOPE will stay down because she hasn't really hasn't kept one ounce down or had a wet diaper.
The frusterating part is that we try SO hard to keep her from germs. She rarely leaves the house, we wash hands and sanitize, I try to bathe her soon after we come home from anywhere germ friendly...
She'll get better again..
Her cardiology apt last week went well. No change in heart function, everything looks okay, but the tricuspid valve is still real leaky. In 7 wks however she did not gain ONE ounce! What else is new tho.. :)
I'm grateful we're doing as good as were doing...

12 comments:

Ali said...

any sick baby is so hard, but for Bela to be sick i can only imagine how hard it is. I'm sorry and pray that it passes quickly!

Sally said...

Oh Ave...I didn't know yesterday got so bad! I am so sorry! What can I do to help?

The Simmons Family said...

Oh Bela... feel better soon!!!! It's such a bummer that she's sick, but at the same time it's a relief to know that it's not her heart causing it. Hopefully with another shot (and I'd breakdown too) she'll get over it.

I read somewhere that Bela was walking all over... WAY TO GO!!

Owen will walk someday :(... joking. I'm just greatful that he moves at all. No more luck with DDD. End of July, I should hear back. Meanwhile, still working on ALTCS. It'll all work out eventually. :)

Glad you had fun in Cali!!

Victoria said...

Oh man, Avery. So, so sorry. We will pray very hard for her. Wish we could do something else!

Victoria

Nicole said...

Get better Bela!!! Avery, you deserve to breakdown after that. I would have too.

Baby Oven said...

Ave I am so sorry! Good luck getting that sweet girl feeling better. We'll be praying for you.

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Katie said...

Avery,
Just wanted to say that I TOTALLY understand how you're feeling with the whole sickness thing! We too, try to keep isolated and away from germs, really only seeing our family and STILL get sick! I'm literally in fear this fall when our oldest starts Kindergarten and all of the bugs he'll be bringing home. Maddie's just getting over another great bug, this time was the flu, and just a month ago was hospitalized with the metapnemovirus. Joy. Anyway, just wanted to share that your fears and frustrations are shared here as well!!!

I also wanted to share a friend's blog with you, she is 21 and has Turner's as well. Beautiful, wonderful girl and thought you'd like to check it out. Email me since I don't know if she wants me to advertise her blog here in the comments section :)

Thanks!
Katie (Maddie's mom)
katieall@smwireless.net

Wendy said...

I'm sorry to hear that Bela's been sick. That's no fun at all. Sorry I haven't gotten a hold of you yet. Things have been CRAZY. I'll call again soon. Can't wait to talk to you.

Evie's Story said...

Poor dear....it can get so scarry again so quickly, I know! Praying YOU get some sleep and the little darling starts to turn a corner!

Matt and Jennae Porter said...

oh you poor guys!! Bela just seems to go from one extreme to the next so quickly. At least all her heart stuff is looking good... that is always good to hear. It was so fun to see her last weekend!! Must have picked up some germs at Grimaldi's... bummer. Next time, we'll just bring you a pizza!!

Staci said...

I'm so sorry Avery. I know everyone says this, but what can we do to help?? Can Benson come play this week?