Thank you so much for your sweet, encouaraging comments, and for the suggestions about the G-tube. I think we are going to go ahead and do it, I feel that it is what is best for Bela at this point and the right thing to do. It is going to be very hard for me to hand her over again though, even for a small procedure compared to what she has been through. I am dreading sending her off with the surgoen, but I am really looking forward to life without an NG! Without the daily frusterations and pain that it involves. I can't wait to see all of her face and let her cheeks, nose, and throat heal. I can't wait for the enormous pressure I feel to get her to eat (and get the tube out) to be gone. Once the G-tube is healed it won't bother Bela at all, she won't even know it's there, so we'll be able to just take it at her pace. We'll still work hard at getting her to eat, but go as slowly as she needs it to be able to make eating a positive, enjoyable thing again, something she dosn't have to be afraid of. Now that I have made the decision I'm ready to go ahead with it, and I feel so much relief.
We've managed to stay out of the hospital...so far. Last night she was still burning up all night. In between motrin doses it got up to 102.5. With motrin it would linger around 100.8. She slept horribly and coudln't get comfortable.. When she woke up from her first nap around 10 she seemed a little better. She was at least perked up a little and could hold her head up. Her color looked much better today too. She still had a temp all day but it stayed around 99.8. I'm hoping for a better night tonight so she can rest. We started her on azythromycin yesterday and I hope that it helps. Her last antiobiotic did nothing, so if this is still viral it won't do anything for her. Her drs want to see her first thing tomorrow so we're going in for some tests and to see what her sats are. I finally turned my pulse oximeter monitor in a couple weeks ago and I don't like not knowing what her saturations are. I'm used to being able to check and it makes me so nervous. They're worried it's RSV... Oh I pray it's not!! It's just plain hard to have a sick baby, and when I know she's so fragile and weak already it's so scary. I wonder if it will always be like this, but I so hope not. I'll post after her apt tomorrow.. hopefully we'll come home.. :)