Wednesday, January 14, 2009

Catch up

Here's a TON of pictures of the last month or so.. My mom has been asking me to put up pictures of Christmas since Christmas morning..sorry mom. Here they are..












Some random shots.. in some of these you'll notice the absence of the very annoying NG tube!! She has been able to have "NG vacations" as her cardiologist put it because she is now eating baby food pretty darn good. The vacations only last about 3/4s the day for now, but it is SO nice to not be 100% dependant on that thing. Whenever we take it out her congestion and cough go away and they come right back when it is put back in... :( Someday soon I hope to be rid of it, but she still has a ways to go because she WILL NOT take her liquids!!







This is my bugger on his first day of PRIMARY!! I have a child in primary.. super wierd for me..


We came home on New Years Eve to this:

She didn't want to miss out on ringing in the new year... It is the only night in the last 4 months she has woken up like that. I think she must be the most excited of anyone that this year (shouldn't) hold any surgeries for her!! It's going to be a great year!! It's been so crazy for so long and it is really starting to calm down a lot. She is such a happy and social (if mommy's close) baby girl. She waves hi and blows kisses.. She is an absolute joy and just melts my heart everytime I look at her.
We had a cardiology apt. and a endocrinology apt this last week. Both appointments went great. She is on the charts for her length!! (3rd percentile, but she is ON) SHe is not however on for weight, in facts she's sorta been dropping off a little lately, but she is still following her own curve pretty well and everyone is happy with it. She is 15 lbs 5 ounces. Her heart function looked great, great pulses, great sats, great x-ray. It couln't have been a better cardiogolgy appointment(besides the fact the it took 4 hours). I'm always so nervous before those apts that we might get bad news, getting good news is a HUGE relief.
We are counting our blessings, always realizing the God is in charge of this sometimes difficult and crazy, but beautiful life... It helps to remember that..

Thank you to those of you who have prayed for Jersey girl's family.. They have been incredibly positive and strong thoughout the last week. Although I can't even imagine the difficult emotions they have experienced, I know from speaking to them that there have been many blessings from this. They still need love and prayers...thank you so much!

Til next time.. (hopefully sooner)..

14 comments:

Matt and Stacey said...

She looks amazing! So great to see pictures! Yes, I think we should have some kind of NG burning when they are out of our lives...it's a slow process tho. Keep in touch and we'll have to get together soon...we miss you guys.
Stacey

Sally said...

She is becoming such a little person now. Could that picture of the two of them together on the striped bedding be any more amazing!?! You need to blow that one up! Please call me so we can hang out sometime soon.

emcghee said...

Hey Ave, I love some of those pictures. I noticed her NG tube was out in a lot of them before you even commented on it, how nice. I'm sure you can't wait till you are ALL DONE with that thing! And Bel too! I like the picture of Benson in his Prince Benson crown from primary, cute. And the one of you and Bela. Talk to you later.

La said...

oh my goodness is she sitting up all by herself now?!! so great. i miss that little sweetie.

lundgrenville said...

Oh Avery-

She is such a doll...she is so happy, so vibrant, so beautiful...such a little angel. Its a blessing to be a part of such an amazing journey of miracles..
Thank you for sharing your little Bela with us.
You'll always be in our prayers...
And we are praying for Heidi & Chris too...Both of you have touched our lives in miraculous ways.
Hugs

The Simmons Family said...

It's so great to see Bela without the NG tube... even though it has to go BACK IN (grrr)... at least she gets a break! The BEST thing i've tried for getting fluids into Owen is his bear cup. You can only get it from a therapist.. I can't find them online.. but they are the honey bear cup with a straw in them. It's been our miracle cup and the only thing that may get Owen rid of his NG tube. '

I need to call you and talk...

LOVE the pictures!! And Finally.. YEAH for a GREAT cardiology appointment!

Andrea

Shannon said...

You all look great! What a year this has been for you. Hope 2009 is very peaceful and quiet!

The Silly Nilly Family said...

Love the pictures. So precious! Thank you for sharing! Take care.

Auburn said...

Love the picture updates! What a relief it will be to get the tube out for good . . .

Karla Marçal said...

Bela esta cada dia mais LINDA!!!
Estou tao feliz com o progesso dela. Adorei o "Prince Benson"!!!
Continuaremos orando por vc!!
Bjos
Sister Siqueira

The Butcher Family said...

Beautiful pictures! Bela looks amazing! It's so good to see pictures of y'all at home!
Not a day goes by that we don't pray for precious Bela!

Heart hugs & love~ Rebecca

Grandma Bertasso said...

We have followed this sweet girl and your family since your folks visit to us in Sao Paulo. You have been incredibly blessed and recognize that...what a joy it is to read of Bela ... our prayers continue to be with you!

Dianne said...

It is such an encouragement to me and my family to see Bela doing so well...and to know that someone out there is going through the same thing and surviving! Thanks for sharing your struggles and triumphs.

Victoria said...

Babies shouldn't come with strings... here's hoping the NG will be all gone soon!