Bela Girl

Sorry for the lack of posts.. It's been an eventful week! So after her confirmed ear infection on Thursday last week, her fever still didn't subside until the next morning. Then Friday we noticed a little bit of what looked like a rash show up on her forehead. Bela sometimes gets blotchy on her forehead so I didn't think too much of it. Saturday tho, it started going down onto her cheeks and neck. By Sunday it was all over her chest, tummy, and back. I called Beth and we figured out she had Roseola, on top of her ear infection! My poor baby! The rash is an indicator that the worst is over though, and by Monday most of the rash was gone and she was feeling SO much better. Tuesday she was almsot back to her sweet little self. Ahhh, so glad to have that over with! Today I took her in to have her repeat Echo done... and guess what?! She decided to surprise us all again and have a good echo! Her pressure measurement was around 40 last week (crossing the safe mark) an...

I took Bela in this morning after a long and kinda scary night. She was burning up all night, even with Motrin she was at 103 for awhile. She was breathing kinda funny too. Found out a couple things today.. First, not surprising, she's got another nasty ear infection, pus and everything. Poor thing. Not sure if the one she had a month ago ever really cleared up, or if this is a new one. We think something else viral might be going on also for her to be soo sick. She slept the whole way there, most of the apt, the whole way back, and didn't wake up until about 4. When she got up her fever was 104.8. She's back down and it's 5:00. It just freaks me out. But we got her started on another antibiotic (ugh), and hopefully it'll do the trick and get her feeling better. Second, and kinda surprising, they saw some heart issues. Her aortic arch was more narrowed today creating more pressure on her right ventricle (her only one) to pump the blood through it and out t...

Yesterday Bela got sick..When she gets sick it hits her so fast and she gets REALLY sick. She just can't even stay awake, she has a fever, and she wont eat.. NOT good. Now I'm playing the should I take her in or let her rest game.. will she get better on her own if she just gets lots of sleep? Or does she need to be seen? I never know.. Today she woke up pretty much the same, she has no energy, just wants to be held and keeps falling in and out of sleep. Ugh.. I get so nervous when she's like this.. I hope it goes away SOON!

As Benson so lovingly calls his sister.. April has been a wonderful month. My birthday was at the end of March and although it began with a trip to the Urgent Care at 2 a.m., it was so much better than last year. Last year I was worried sick about my sweet little girl and her life. I didn't know if my days were numbered with her, what her future held.. I was stressed beyond belief having just brought her home, but realizing really quick that something was still very not right with her, and she was admitted again a few days later. It was such a crazy time, and I thought about that a lot on my birthday. It was the best gift for me to see how far she's come, and to have the overall feeling of the day be so different. The urgent care visit after she screamed for 3 hours turned out to just be an ear infection. Thank goodness. It's amazing to just get that news, something so normal as an ear infection. We'll take it! This month she learned how to pull up on everythin...