I took Bela in this morning after a long and kinda scary night. She was burning up all night, even with Motrin she was at 103 for awhile. She was breathing kinda funny too. Found out a couple things today.. First, not surprising, she's got another nasty ear infection, pus and everything. Poor thing. Not sure if the one she had a month ago ever really cleared up, or if this is a new one. We think something else viral might be going on also for her to be soo sick. She slept the whole way there, most of the apt, the whole way back, and didn't wake up until about 4. When she got up her fever was 104.8. She's back down and it's 5:00. It just freaks me out. But we got her started on another antibiotic (ugh), and hopefully it'll do the trick and get her feeling better. Second, and kinda surprising, they saw some heart issues. Her aortic arch was more narrowed today creating more pressure on her right ventricle (her only one) to pump the blood through it and out to the body. The narrowing also is causing both her valves to have worse leakage. It's now crossed the 'safe' mark, so a cath seems to be in the near future to balloon open the narrowing. First though, we'll redo the echo again on Wednesday to make sure the numbers weren't affected by her high fever, but sounds like either way a cath is going to be necessary soon. Not the worst news, but I was just hoping things with her heart would be the same and not worse. It always stinks to get any 'worse' news. It's kinda like getting a kick back into reality, and it just bring all the feelings of being so scared for her back to the surface. Her recent symptoms could be caused by the extra workload on her heart right now .. Because blood flow is restricted to the body right now, her lungs are getting an excess of fluid and so she's pretty congested. She also hasn't wanted to eat at all since the last time I posted. She sort of just stopped one day... a red flag somethings up.
But she'll get better, her drs will know what she needs, we'll do it, and move on. She's so darn sweet when she's sick. I could hold her all day long and let her sleep on me.. I have so much empathy for her, and also so much respect. She's been 'healthy' such a short amount of her life, yet she's such a trooper through it all. When she is feeling her best, she just shines. What a priviledge it is to be her mom.
I miss this girl..
Hopefully she'll be back soon.