Much happier!

Since Friday afternoon Bela has been doing so much better! Two days of shots and she was feeling much better and has been sleeping and eating since. Yeah! (by eating I mean being tube fed and not throwint it up.) Everytime we make some progress with eating orally, she gets sick and by the time she starts feeling better it's like we've started over. I think eating is just such a bother to her, since she's never really had to do it herself. She just dosn't want to stop for 2 minutes to eat.
Anyway, it is nice to have her back, we missed our happy girl. She is back to blowing kisses, waving at everyone, saying baby 500 times a day (her favorite word), crawling over to the bath pointing at it and saying "ba!", dropping everything so she can say UH-OH, and climbing up the stairs..





Comments

La said…
so so glad she is feeling better. she looks adorable going up those stairs!
July 20, 2009 at 9:35 PM
Auburn said…
Yeah! So glad to hear she is doing better!
July 20, 2009 at 10:40 PM
Anonymous said…
A fellow heart baby in need of help.
http://jaycef.blogspot.com/
July 22, 2009 at 7:24 AM
Evie's Story said…
Thrilled to hear miss Bela is doing so much better...know you are relieved. Those cute picture of her climbing stairs are precious!
July 22, 2009 at 10:41 PM
emcghee said…
I'm so glad she is feeeling better. I like her ponytail! Super cute. Seems like we haven't seen you guys in forever.
July 24, 2009 at 4:25 PM
Greg and Heidi said…
What is amazing is how well they rebound when they feel better. Hearing you mention all of that overwhelms me a little. I have this pipe dream that if Ethan gets better EVERYTHING will be easy from here on out. We have to just tell ourselves that to get through each day right?! Maybe we can rest and be worry free in the next life ;)
Love-
Heidi
July 24, 2009 at 9:20 PM
Ani said…
Still checking back often to see how litte Bela is doing. She is such a cutie. I think her and my Kate (14 months) would be good friends!
There is a family with a newborn that is suffering from 9 heart defects, and fighting hard for his life. I told her about your blog, so maybe she will contact you. But if you want here is the link to her blog:
http://tyandcaro.blogspot.com/
I am sure you an expert by now, and could maybe shed some light for her.
I am so glad Bela is doing better!
August 2, 2009 at 9:03 PM
johansen vikings said…
She sure does look like a woffy!
August 2, 2009 at 10:10 PM
Heather Lee said…
so, random that I'm on your blog...long story. But, I took family photo's by the same person that your friend Caitlyn did, so I was looking at her blog and you looked familiar. Is your maiden name Woofinden? spelling? Woofington? Anyway, I'm glad I came upon your blog anyway because you are a strong mom and I always need those for examples.
August 4, 2009 at 12:13 PM
Angie Milne said…
i love the blog layout ave! to cute.
August 4, 2009 at 7:16 PM
Post a Comment

Popular posts from this blog

Transplant 2- Honoring her donor, and her Aunt Ju

Image
Early in the morning on October 23rd, Tanner got a phone call that his sister, Julie, just a year and half older than him, had passed away. My sweet mother in law had to receive this devastating news from Bela's hospital room. Although Bela was unaware of all of it, at the same time they were helping my mother in law just outside her room in the hall, Bela's heart rate shot up to 180 and her rhythm went crazy for about 3 hours until they finally got it under control. We still don't really know why, most likely her heart telling us it was nearing its end. In the late hours of that very same day we got the call we had waited for for 11 months. A match had been found for Bela. Tanner had already decided he wanted to sleep there with Bela that night.  As hard as this hospital stay was becoming, there was a tangible peace being there with her in that room.  When he was woken up with the news that night, he stood in the hallway outside her room and wept as the flood of emotions o...
Read more

3 weeks out and doing great!

Image
Bela has been doing pretty darn good. I'm amazed by her.. as usual. She dosn't want to be held back any longer! She begs me to go to the park, got to the store, get back to anything normal. We're taking it slow, but she's been out to the park a couple times when it's been not too busy and she's so happy to be sitting in the sand with her shovel in hand. Sometimes it's like she didn't skip a beat. She has times still though where she seems tired, or grumpy, or like something bothers her but she just can't quite tell what it is. But overall, oh my gosh! 3 weeks post-op and she's a rockstar! I'm just so darn proud of her, for doing something so hard and for coming out of it so well. She tells everyone that she just got her heart fixed and sometimes even shows them. I'm never quite sure how to react when she pulls her shirt right up. It's like she's actually almost proud of it, as she should be, but I cannot understand how...
Read more

First transplant post

Image
This space used to be very healing for me. I wish I never would've stopped documenting here...I love knowing the first 5 or so years of Bela's life were well documented. But as I sit here with the familiar view of her hospital bed and sounds of beeping monitors, it feels almost necessary for me to write here again. Bela has had 12 incredible years of living life since my last post on here.  We were getting really comfortable with our cardiology appointments every 4-6 months, endocrinology every 3-4,  bloodwork every couple months, and occasional MRIs, procedures, or trips to the cath lab. Life has been full and so good. She's traveled a ton, ate a lot of good food, hung with friends, participated in theater, and found so much joy in her simple but rich life. We also had two more kids in that time.. more chaos and more love.  I don't know if anyone will still look for and find this blog looking for hope for HLHS, but I hope so.  We've now been inpatient listed for he...
Read more