Monday, March 5, 2012

Fontan 2

We've been back with Bela for about an hour.. I can't take my eyes off her. She's done and I can't believe it. It's so nice to be through with that part. She is resting pretty peacefully and still pretty sedated, but is beginning to stir. When she does she gets a pained look on her face. This is a very tricky period and one that is always really difficult for us to watch. She needs to wake up enough to be able to come of the breathing machine and so she will feel pain and discomfort and get really upset. Her little arms are already restrained in anticipation of her waking up.

She did have a couple issues during surgery we were just told about. She had some arrhythmia issues and SVT (her heart rate was way too fast) and she needed to be paced back to a normal rhythm a few times. But since she has been back her numbers have all looked good. Praying they stay that way.

I feel so bad this time around wondering what she's thinking and feeling. If she is wondering why she came here perfectly fine and is waking up feeling who knows how bad. I can't imagine what it feels like to have your sternum cut open and pulled apart 4 inches and then sewn back together.

I feel seriously in AWE today of what has been done to give her life. I'm so thankful for it. I feel peace and comfort today so I KNOW that she does too.


S and K said...

She is such a trooper! It's so hard to see spunky, cute, Bela like this. She so strong & such a fighter!!! She never ceases to amaze me! I hope she gets her breathing tube out quick & that the rest of her recovery is quick too! Tell her we're all thinking about her & praying hard for her! I just love that little girl!!!! As always thanks for the update!!!!

The Simmons Family said...

She looks really great! I can't wait to hear how her sats are after extubation. Waking up is the hardest, then the few hours after extubation are near killer as they can't drink.. and it's the ONLY thing they want. Ugh. Prayers for a quick recovery. Arrythmias are totally common immedietly after the Fontan (or so I've been told!)

Ali said...

Amazing - to think what she's had done, and then see how good she looks without the breathing tube, etc. So humbling! So happy and grateful for your good news!

Grafton and Laurisa Milne said...

oh i can't bear to see her like this. What a brave tiny little body. I'm so glad everything went well...i've been thinking about you guys all day... You are so strong Ave, you inspire me. I love you, and that little angel. Good luck the next few days. Let me know if there is anything I can do.