Tuesday, June 3, 2008

My Bela is keeping everyone on their toes today... There has hardly been a few seconds when someone is not in here doing something or checking this or that. I just got back from looking at her last x-ray with her dr. and we all couldn't believe what it looked like. Her entire left lung and about half of her right lung are completley white, meaning they are completley filled up with something whether it's fluid or mucous or some other thing. It wasn't a pretty x-ray. They thought it may have collapsed, but now they are thinking that it may be pneumonia. Very scary for Bela. They just pulled some of it out of her lungs and it looked really thick. They sent it off to be cultured again to see what grows and will then try to tailor her antibiotics for what she needs. We don't know where she could've picked something like this up. Her little systems are having to work so hard to support her through this. I found out that her BNP number which basically tells how good her heart is working (and should be lower than 200 or so) was at 13,000 when we got here Sunday night. Her dr. used the term astronomical to discribe how high that is and said it was beyond heart failure. It assures me even more that she was blessed from on high to be kept alive long enough to get here and get care. Her number yesterday was 8,000 and today it is at 200. MUCH BETTER. Her heart is now able to get a rest with all the support she's getting now. Her numbers look good, better than they really though they would look with her lungs looking like they do. I'll just count that as another blessing. We are being so incredibly blessed. She would most likely not be here if it wasn't for a loving Heavenly Father that is looking after her. During all the chaos Sunday night when they were working on her my mom kept telling me that the angels were with her to comfort her. I always like to think that my grandpa's are with her. They were both extremely close to me and I know that they are with her in her darkest times. While she is heavily sedated like she is right now, it's comforting for me to think that she's in a happy place, somewhere between heaven and earth with loved ones she recently left in heaven. A mother has to think that way or this is all too hard. I just dont want her to feel any pain or suffer in any way. This is such a scary time, she just needs to be strong enough to make it to her next surgery. Please pray that she will. Thank you for your love and support to us..we couldn't do it without you.
I'm not sure how many of the staff here check this blog, I know some do, so I just wanted to say a huge thank you for the care she has gotten during this stay. This team is incredible and everyone is so concerned about Bela. all day long I'm giving her update to other nurses that have had Bela before and want to know what is going on. I am sooo grateful to be here with this team of nurses, doctors, and surgeons. Thank you for taking care of my daughter!

12 comments:

David said...

Oh sweet Bela Boo...we're praying for you.

Lily's Mama! said...

We are all praying hard for Bela. I tried to call the hosptial earlier today but you must have been out of the room when I called. Thank you for the update...my stomach has been in knots all day! Sending Hugs and Heart Love!!

Scott, Rebecca, Wyatt & Annabelle Butcher said...

Oh Avery~ I just checked the blog and read about sweet Bela...she is in my prayers (as are you and the rest of your family). She is such a strong little girl! I would like to send you something...could you please email me at rsbutcher@bellsouth.net when you get a chance with an address...either hospital, home, where ever.
Praying...Heart hugs~ Rebecca

Callisters said...

Hello-You do not know who I am, I came across your blog awhile ago and while I was looking at different posts I realized who you were. My husband is Carson Callister or you might remember him as Elder Callister. He remembers you! He loves your parents, they were such a great example to him. I think of your cute little family daily and I am so sorry for all the scares you are going through at this time. At the same time I do have to thank you for showing your strong spirit through this difficult time, you are such a great example to me! Good luck with everything, we are praying little Bela.

Anonymous said...

You don't know me...I'm friends with the Brantons. Zach was Bela's neighbor for a while. Anyway, I am sitting here reading your blog and crying. I can't imagine being in your shoes. I am praying like crazy for you and your sweet Bela. I am praying for healing for her and the Lord's peace that passes all understanding for you and your husband.

Love,
Kirsten Lunsford

Mimi said...

Sweet strong little girl! She is in our prayers Every night! We are constantly thinking of you guys and wish there was more we could all do. We missed you guys in Rocky Point and hope you can look forward to joining us next year for a well deserved vaca. Give her lots of kisses from all of us!

Sheri Packard said...

So scary! I am so happy you got to the hospital in time! We will continue to pray for Bela, and for you... Your posts always put my life into perspective.

camillian said...

That is not good about her lungs, poor Bela is going through so much. I am convinced that she is still here because of the strong faith of your family. I love to read how much faith and hope that you have, (and all of us who know are praying for you too!). I know that you have affected many lives in a positive way because of this really difficult experience. Bela is such a strong little gal. I can't wait to see what kind of person she turns into down the road, she's making a difference in so many lives already!

Erin said...

Hang in there Avery...this fight is not over yet. Your little girl is not giving up easy and it seems Heavenly Father is right behind her in her fight. You have a strength beyond anything I can imagine. We appreciate all you have helped our family learn and for the perspective you have given us. Our prayers are continually with your family, especially sweet Bela. May your heart be at peace during this time.

emcghee said...

Ave, Thanks for posting during all this. I love to be able to know whats going on without bothering you. I think the angels must be with you and Tanner to. i seriously don't know how your doing it. Love You, erin

Simmons Family: said...

Sounds like Bela is making some improvements! We'll continue to say Prayers. Do you have any idea when they are planning on doing her cath??

Andrea

Anonymous said...

You don't know me, but I am Bryan Mason's mother. He let us know of the challenge you are going through with your beautiful baby Bela. I have kept track of you for a while now, but just decided to post a comment today. I wanted you to know that you are in our prayers, and we have also kept your family on the prayer roll at the Manti temple. All our prayers and love Shannon