My Bela is keeping everyone on their toes today... There has hardly been a few seconds when someone is not in here doing something or checking this or that. I just got back from looking at her last x-ray with her dr. and we all couldn't believe what it looked like. Her entire left lung and about half of her right lung are completley white, meaning they are completley filled up with something whether it's fluid or mucous or some other thing. It wasn't a pretty x-ray. They thought it may have collapsed, but now they are thinking that it may be pneumonia. Very scary for Bela. They just pulled some of it out of her lungs and it looked really thick. They sent it off to be cultured again to see what grows and will then try to tailor her antibiotics for what she needs. We don't know where she could've picked something like this up. Her little systems are having to work so hard to support her through this. I found out that her BNP number which basically tells how good her heart is working (and should be lower than 200 or so) was at 13,000 when we got here Sunday night. Her dr. used the term astronomical to discribe how high that is and said it was beyond heart failure. It assures me even more that she was blessed from on high to be kept alive long enough to get here and get care. Her number yesterday was 8,000 and today it is at 200. MUCH BETTER. Her heart is now able to get a rest with all the support she's getting now. Her numbers look good, better than they really though they would look with her lungs looking like they do. I'll just count that as another blessing. We are being so incredibly blessed. She would most likely not be here if it wasn't for a loving Heavenly Father that is looking after her. During all the chaos Sunday night when they were working on her my mom kept telling me that the angels were with her to comfort her. I always like to think that my grandpa's are with her. They were both extremely close to me and I know that they are with her in her darkest times. While she is heavily sedated like she is right now, it's comforting for me to think that she's in a happy place, somewhere between heaven and earth with loved ones she recently left in heaven. A mother has to think that way or this is all too hard. I just dont want her to feel any pain or suffer in any way. This is such a scary time, she just needs to be strong enough to make it to her next surgery. Please pray that she will. Thank you for your love and support to us..we couldn't do it without you.
I'm not sure how many of the staff here check this blog, I know some do, so I just wanted to say a huge thank you for the care she has gotten during this stay. This team is incredible and everyone is so concerned about Bela. all day long I'm giving her update to other nurses that have had Bela before and want to know what is going on. I am sooo grateful to be here with this team of nurses, doctors, and surgeons. Thank you for taking care of my daughter!