hope
I'm going to attempt to make a post, but really I am so dead tired so I hope it ends up making some sense.. :) Bela hasn't been sleeping too great the last few nights..
Tanner and I are always running into people or hearing of people that say they check our blog a lot. I knew that there were lots of good people out there keeping tabs on Bela and her progress. I keep getting more and more nervous to write posts thinking of how many people might read them... We decided to install a counter on our blog to see just how many people come by to check up on her. In 5 days we've had 2200 people. WOW. At first it made me never want to write again for fear of how many people read this. :) But then it made me amazed to have so many people that care about us and what we're going through. It makes me so grateful to think of so many people supporting us and going through this whole journey with us. Today was a good day because a lot of you spent today fasting and praying for our little girl. It is incredibly touching and comforting.
I read Tanners last post and it sorta made me feel sad. No offense to you Tan :), and not to down play the seriousness of all this, but I hope it didn't convey to everyone else feelings of sadness. Yes, I am feeling very emotional and scared at times, but we could not be more grateful for what we've been given so far. To have had Bela this long, when we were told to expect no time at all. To have had her here in our home, to kiss her goodnight every night. I bring her in bed with me every morning when she first starts to fuss and she goes back to sleep for another hour or so. THen I get to wake up to her beautiful blue eyes and a huge grin. It's my favorite. She is such a tiny little thing, but the spirit she brings into our lives is unbelivably great. I wish everyone could spend time with her and feel of it. We've been so blessed the last two months to have her home and to be in such a good position for this surgery. She is 11 pounds 5 ounces!! That alone is an amazing acheivement for her. She wasn't even 8 pounds yet at 4 1/2 months old. While there is lots and lots about this that is incredibly hard to go through, there has been soo much happiness and joy found along the way. I feel very much at peace that she will be kept in the Lord's hands throughout this surgery and recovery, as she has been for the past 6 months. We all will be. I am feeling very hopeful.
She has been showing us signs for a while now that she is ready, and so for that I am actually anxious for it to come. She is just not a very happy baby most of the time and it gets really hard. I just want her to feel better, and I hope this will do that for her. I want her to be able to eat and not throw up various times each day. I want her to be able to go out and enjoy the world without worrying about germs or getting sick. I can't wait until she can stay awake longer than an hour without getting so worn out.
We will get called in sometime on Tuesday and will do all the pre op stuff as well as have our consult with the surgeons. We'll stay the night and she'll be taken around 7 a.m. in the morning. She is the only case that day cuz it will take most of the day. I'll keep updates frequently...it gives me something to do during the waiting period and uplifts me so much to think that we're not going through it alone. We sooo appreciate your prayers and your support.
Good night!
Tanner and I are always running into people or hearing of people that say they check our blog a lot. I knew that there were lots of good people out there keeping tabs on Bela and her progress. I keep getting more and more nervous to write posts thinking of how many people might read them... We decided to install a counter on our blog to see just how many people come by to check up on her. In 5 days we've had 2200 people. WOW. At first it made me never want to write again for fear of how many people read this. :) But then it made me amazed to have so many people that care about us and what we're going through. It makes me so grateful to think of so many people supporting us and going through this whole journey with us. Today was a good day because a lot of you spent today fasting and praying for our little girl. It is incredibly touching and comforting.
I read Tanners last post and it sorta made me feel sad. No offense to you Tan :), and not to down play the seriousness of all this, but I hope it didn't convey to everyone else feelings of sadness. Yes, I am feeling very emotional and scared at times, but we could not be more grateful for what we've been given so far. To have had Bela this long, when we were told to expect no time at all. To have had her here in our home, to kiss her goodnight every night. I bring her in bed with me every morning when she first starts to fuss and she goes back to sleep for another hour or so. THen I get to wake up to her beautiful blue eyes and a huge grin. It's my favorite. She is such a tiny little thing, but the spirit she brings into our lives is unbelivably great. I wish everyone could spend time with her and feel of it. We've been so blessed the last two months to have her home and to be in such a good position for this surgery. She is 11 pounds 5 ounces!! That alone is an amazing acheivement for her. She wasn't even 8 pounds yet at 4 1/2 months old. While there is lots and lots about this that is incredibly hard to go through, there has been soo much happiness and joy found along the way. I feel very much at peace that she will be kept in the Lord's hands throughout this surgery and recovery, as she has been for the past 6 months. We all will be. I am feeling very hopeful.
She has been showing us signs for a while now that she is ready, and so for that I am actually anxious for it to come. She is just not a very happy baby most of the time and it gets really hard. I just want her to feel better, and I hope this will do that for her. I want her to be able to eat and not throw up various times each day. I want her to be able to go out and enjoy the world without worrying about germs or getting sick. I can't wait until she can stay awake longer than an hour without getting so worn out.
We will get called in sometime on Tuesday and will do all the pre op stuff as well as have our consult with the surgeons. We'll stay the night and she'll be taken around 7 a.m. in the morning. She is the only case that day cuz it will take most of the day. I'll keep updates frequently...it gives me something to do during the waiting period and uplifts me so much to think that we're not going through it alone. We sooo appreciate your prayers and your support.
Good night!
Comments
Love,
Katie (mom to Maddie, HRHS)
http://allredbabygirl.blogspot.com
Just know, we are praying for you, and once Bela is doing better(not that she isnt doing well now) but once she is awake for longer periods of time, we will have to get these 2 special girls together.
Oh, I had to tell you, when I read about how you will pull Bela in bed with you when she starts to fuss, so you can get another hour of rest, it made me smile, laugh, and cry. I do the same thing with Lily. Most days I will fall back asleep with her snuggled up against my chest, but then somedays, the Lord doesnt allow me to fall back asleep...but allows me to lay there in complete peace, while staring at the miracle laying next to me. Bela, and Lily have been fighting for the same number of days now, 177 to be exact. And those 177 days have been the most incerdieble, inspiering, happiest days, yet saddening, heart breaking, all at the same time. My special heart baby, along with the millions of others, have opend my eyes to the hand of God, and the miracles he gives us. And to know that one lays in bed with me, and will one day utter the word mama, past her lips, there is no greater joy in the world.
The Lord blessed us with Children, but I am in awe that he chose us parents to be the caretakers of such a precious miracle. That he would intrust us with that gift is beyond words.
I will be looking for all the updates through out the day. I will make a trip down to visit you guys once everything is settling down..just give me the word..I would love to catch up in person. Give Bela kisses for us. Sending you our heart hugs and Love,
Jenna and Lily!
Melissa (Galt) Bowman
Bela will continue to defy the odds and have a speedy recovery and be back home in your bed... only healthier and stronger!! She is such a TINY little miracle!
This week won't be easy, but it will be SO worth it in the end. Take help where it's offered...let people serve you and help you during this time!! I always said "no, no... I can handle it" .. I wish I would have just accepted!
Good Luck and I can't wait to read your updates this week!
PRAYERS SWEET BELA!!!
Andrea
This is your cousin, Shannon. I don't comment often, but we do check in all the time to see how things are going. Know that you are always in our prayers and this week will be no different. You are an inspiration to me. Thanks for posting and letting us all have a little glimpse into the life of sweet little Bela.
Milena Barlow here, (Sister da Silva), I wanted to tell you that I am praying for Bella and your family! My heart goes to you because I am a mom that just had my new baby beat a tumor in his Larinxs...I understand that you are emotional and I wish I could be there to give you a hug! I will always love your family and evertyhing that you did for me in my mission in Brazil! I wish you the best! YOU CAN DO IT BELLA!
Love,
Lisa Hong
Heart hugs~ Rebecca
Love and Heart Hugs!
Suzie
(Lindsay's Mom)
My name is Kally. You don't know me, but I found your blog through my sister. I am 23 years old and have Turner's Syndrome. I just want you to know that you and your family are in my prayers. I know first hand some of the struggles that you and your daughter are going through, and reading your blog has made me feel "grateful for my anatomy" as you said about your Bela. (I hope that makes sense. Sorry:) There have been times when it has been really, really hard. But I want you to know that it can be done! I want you to know that I will be praying for your family.
I am so grateful I read about your precious Bela.Thank you for keeping us all updated. Good luck with everything.
Love,
Kally
kally.davis@gmail.com
It was great to talk to you tonight and to meet Bela. We're glad we can pass the time here together this time. You are in our prayers.
Love,
JR, Molly and Mark Wright
We are praying for Bela and for you!
Love,
Carol