Post Glenn!!!
So many emotions flood through you when you're going through this... It's really overwhelming to walk back into the room and see her and all the equipment that surrounds her. I thought this time might be easier because we've done this, twice, but it's really not. This was Bel's first surgery with actual corrective work and I'm starting to realize that her first surgery was a piece of cake. But, I do have to say that everything has gone very very smooth. We've been with her now for about four hours. The first three hours were craziness, but it has settled down quite a bit and Bela is just resting very peacefully. Her blood pressures were high at first, but they are right where they should be now. Dr. Nigro, her surgeon, said that all her numbers are right where they should be at this point. He did say that the next 48 hours however will be critical. For now she looks great and we are all SO glad to have this day come to an end. We have a very good nurse tonight (Rhonda, for those that are wondering) and so she will be in good hands.
I feel so helpless through all this. I remembered that feeling immediatley when I walked in the room. Everyone doing so many things to your child and you just stand in the corner and pray. I hear them talk and make decisions to go up on this, go down on that, give her some of this, and you have no say. It's just wierd after having all the say in her care (well, some of it I guess) to having none and just watching and hoping they make the right decisions.
It's just me and my Bela now and I can't even say how much I love this girl. There are A LOT of people on the floor right now, every single room is full which has never happened during our time here. I feel like just telling everyone how amazing she is, how much she's been through, and how far she's come. I am so grateful to be here, to be post Glenn, because we never knew if this day would come for us. Her little body, however weak her anatomy may be, is fighting so hard. Last night she was putting on a show for everyone, smiling, talking, and kicking her arms and legs. I guess she was happy to have made it here too.
I'm going to get in my comfy little cot now to try and get some sleep, but I will post again in the morning. I feel like I can never say this enough, but thank you for being with us today through the blog and for your comments. Thank you for your prayers as well.
I promise pictures will come tomorrow.. We left our cord at home today. :(
I feel so helpless through all this. I remembered that feeling immediatley when I walked in the room. Everyone doing so many things to your child and you just stand in the corner and pray. I hear them talk and make decisions to go up on this, go down on that, give her some of this, and you have no say. It's just wierd after having all the say in her care (well, some of it I guess) to having none and just watching and hoping they make the right decisions.
It's just me and my Bela now and I can't even say how much I love this girl. There are A LOT of people on the floor right now, every single room is full which has never happened during our time here. I feel like just telling everyone how amazing she is, how much she's been through, and how far she's come. I am so grateful to be here, to be post Glenn, because we never knew if this day would come for us. Her little body, however weak her anatomy may be, is fighting so hard. Last night she was putting on a show for everyone, smiling, talking, and kicking her arms and legs. I guess she was happy to have made it here too.
I'm going to get in my comfy little cot now to try and get some sleep, but I will post again in the morning. I feel like I can never say this enough, but thank you for being with us today through the blog and for your comments. Thank you for your prayers as well.
I promise pictures will come tomorrow.. We left our cord at home today. :(
Comments
Andrea
Just wanted to say hello and tell you I have been following everything but haven't posted a comment yet. I am either in tears or near tears by the time I am done reading a post and don't know what to say :)
Your family is an inspiration and I am so glad that everything is going smoothly! Bela is beautiful.
Laurel
Love,
Katie (mom to Maddie, HRHS)
I know how you feel about wanting to share with everyone about your special little girl. I feel the same way to...Bela is a true miracle, along with Lily, and I love to tell everyone I know about both of them and their amazing stories. Bela has inspired me just as much as Lily has. I have faith in the good Lord Almighty that he will see her through this and much more.
I will look forward to reading an update tomorrow, and I will call you tomorrow. Give sweet Bela tons of kisses and let her know she has many angels in heaven watching over here along with everyone here praying for her.
Sending you hugs, stay strong mama, when she wakes up, she is going to want to see your smiling face.
XOXO
Jenna and Lily
Natalie
you might know my sister shannon and my dad because he was first counselor to your dad in the stake presidency. Anyway, I have followed up on this blog and every time I read it my testimony gets stronger. You and your husband are so strong to be able to go through this and I admire you for that. I pray for your family and little bela that you guys will make it through all of this. I am happy everything did go well today! Hang in there!
Milne wrote me today and told bout Bela’s surgery. Thanks for the post, I’m glad to know how things going. I am far from to know how you feel about seeing others making decisions about your daughter, and there is nothing you can do besides pray… but I can say that I understand a little bit, since the only thing I can do for you is also pray…
I don’t know you personally, but I love you and your family. Milne is a big brother to me and I love him with all my heart, I pray for him and your family and I hope that everything is going to be fine at the end. I hope that one day I could know you personally, and Benson and Bela to.
I trust in the Lord, and I know that you and your family too. Thanks for being so strong and hold this situation with faith, you are a big example for me.
Ah… thanks for taking care of Milne, He probably gives you more work than your kid’s… hahahaha
Love ya,
Godoy
Love, Suzie and Lindsay
Keisa
That goes for you too A&T. Abracao.
We are rooting for Bela. She is a gift and we have loved her from a distance for longer than she was born. Your are both amazing and we wish we could be there to join in the vigil. We are praying for you every moment. Love Carl and Mickie
She is a fighter from all I have read and heard,indeed a valiant spirit.
With love,
The Garricks