Tuesday, September 9, 2008

A Picture Post

Since pictures say a thousand words, I think these will convey to you HOW MUCH BETTER our little Bela has gotten over the weekend! Sunday and Monday have been very tough withdrawal days for her, but today they seem to be getting a little better. Probably because yesterday they decided to give her more meds for a couple days and then try to slowly wean again. She couldn't handle coming off them the first time. She couldn't stop her little body from shaking and kicking, her eyes were plastered open, and she is doing this weird hacking, gaging thing and keeps throwing up her feeds. It's been really hard to watch her go through them, but they are definatley a part of heart surgery. After you get your heart fixed, you go through drug rehab. So now we just work on getting little miss Bela off her drugs (we'll probably still come home on some and continue weaning from here), and then get feeds figured out and we'll be able to come home!












She had a lung profusion study done yesterday and it looked great!! Better than they expected it to look I think... They were worried about her left lung profusion, and it actually looked even better than the right lung! Go figure...

I think she's been held nonstop since Sunday...it's too hard to put her down. We all take turns and she is loving it. It's been a great weekend, full of lots of progress. She got her oxygen cannula off and her central line out of her neck (you can see it in the first picture of her...it's a nasty little thing). All her meds are off now execpt her home meds and two that she is still trying to come off of.


We got this adorable onsie from some friends of ours on the floor. They have a little girl one month younger than Bela that was the second hybrid case after Bela. SHe will be having her Norwood/Glenn procedure done on Thursday. Please add her to your prayers this week because little Addison already had a different surgery a couple weeks ago that didn't give the results they'd hoped for. So now they've decided she needs this surgery instead, so she has gone through more than she needed to. She has just almost fully recovered from surgery, only to go back in to the OR for an even bigger one. They are an incredible family.. Addisons story is at www.caringbridge.org/view/addisontams. Thank you!

22 comments:

AL and ALI said...

she looks so good! her chest looks great too! cute little bela.

lundgrenville said...

Its amazing to watch the Lords miraculous work in progress. She looks like a little Angel. The Lord sure has answered all of our prayers.

Andrea said...

She looks great! So glad that things are going well. She is definately a little miracle! You guys are amazing.

camillian said...

Bela is honestly a miracle! She looks amazing! She is adorable, there's such a gigantic spirit underneath that tiny little body!

S and K said...

Talk about progress. That's incredible. She is so cute I can't stand it! Those big eyes, she's going to be a heartbreaker!!! I'm so glad that she is getting spoiled with everyone holding her, and hope that everything continues to go well and that going home isn't toooooo far off for you guys.

Auburn said...

She looks GREAT! So alert and much different. I'm so excited for you all. Tanner, your testimony on Sunday about killed me. I wasn't just tearing up, I was FULL ON crying.

Matt and Jennae Porter said...

Yay for pictures!!! She looks AMAZING. Poor thing though- I can't imagine having open heart surgery and then having my pain meds taken away- I'd be cranky too! We hope this hospital stay is the last one for you guys for a long, long time.

Jennifer said...

Bela looks amazing -- What a miracle girl! Thanks for sharing the pictures. I left you a message today -- love to hear back to see what we can arrange. Hang in there -- You and Tanner are pretty amazing, too!

The Ridgway Family said...

She rally does look wonderful. I am so happy for you all that she is doing so well. Hopefully she can come off of the drugs soon and be almost medication free! Go Bela, we are so proud of you.

Keisa

Erin said...

Wow Avery she looks great!!! Amazing what a few days can do. I am just thrilled that things are progressing as fast as they are and it sounds like coming home may not be that far in the future...we hope hope hope!!! And she's wearing some clothes now...woo hoo! She's such a little cutie (even without clothes). Well after all this I do not know how anyone can say miracles do not happen in the modern day. So glad you are getting such good "hold" time...I am sure Bela loves every minute of it (not to mention mom and dad). I left you a message so call when you can...lots o love.

The Zemp Family said...

She looks so wonderful!!! I cry tears of happiness every time I hear she is doing better. I am so happy she you can hold her again. I wouldn't put her down either. What an angel!

Simmons Family: said...

Bela ... you are a ROCKSTAR!!! Look how great you are doing!!

Andrea

Dallas and Krista said...

Bela you look beautiful! Way to go sweet girl.

Ryan and Holly Gibb said...

Love, love, love the pictures! She couldn't be any cuter. She is looking better and better.

Sally said...

Oh my goodness..big eyes, clothes on, getting held and propped up...I am so happy to see little Bela Boo doing this. Can Bens come play at all this week?

Carmen said...

She looks amazing... Good job Bella, you did it...You go girl..
hugs from all of us..

The Butcher Family said...

Bela looks amazing! She is so precious!!!
We continue to keep her and your whole family in our prayers.
Thanks for all the great pictures!!! What a JOY!
Heart hugs~ Rebecca

The Silly Nilly Family said...

Yeah the visuals really do tell a story. She has been through so much. She just looks wonderful. She looks refreshed. Sweet little thing. Avery even though I'm not there imagine I'm giving you a big long hug right now! {{{AVERY}}}

Meriel Frandsen said...

She's looking so great! I'm glad things are looking good for her and she's on the up and up. What a sweetheart!

ashley said...

i can't believe all this little angel has gone through! she looks amazing. so glad you all get to hold and love her now. i am sure that helps her too!

La said...

i like the purple outfit. how is it going at home?? i was so happy to hear you were home, but then i thought it may be even harder at home since there aren't any nurses. (unless you persauded some to follow you home!) we love you guys.

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