Since pictures say a thousand words, I think these will convey to you HOW MUCH BETTER our little Bela has gotten over the weekend! Sunday and Monday have been very tough withdrawal days for her, but today they seem to be getting a little better. Probably because yesterday they decided to give her more meds for a couple days and then try to slowly wean again. She couldn't handle coming off them the first time. She couldn't stop her little body from shaking and kicking, her eyes were plastered open, and she is doing this weird hacking, gaging thing and keeps throwing up her feeds. It's been really hard to watch her go through them, but they are definatley a part of heart surgery. After you get your heart fixed, you go through drug rehab. So now we just work on getting little miss Bela off her drugs (we'll probably still come home on some and continue weaning from here), and then get feeds figured out and we'll be able to come home!
She had a lung profusion study done yesterday and it looked great!! Better than they expected it to look I think... They were worried about her left lung profusion, and it actually looked even better than the right lung! Go figure...
I think she's been held nonstop since Sunday...it's too hard to put her down. We all take turns and she is loving it. It's been a great weekend, full of lots of progress. She got her oxygen cannula off and her central line out of her neck (you can see it in the first picture of her...it's a nasty little thing). All her meds are off now execpt her home meds and two that she is still trying to come off of.
We got this adorable onsie from some friends of ours on the floor. They have a little girl one month younger than Bela that was the second hybrid case after Bela. SHe will be having her Norwood/Glenn procedure done on Thursday. Please add her to your prayers this week because little Addison already had a different surgery a couple weeks ago that didn't give the results they'd hoped for. So now they've decided she needs this surgery instead, so she has gone through more than she needed to. She has just almost fully recovered from surgery, only to go back in to the OR for an even bigger one. They are an incredible family.. Addisons story is at www.caringbridge.org/view/addisontams. Thank you!