First and foremost...The tube is out!!! For awhile there I was a little nervous about reintubation, so I didn't want to post that she had gotten it out, only to repost an hour later saying it was back in. But it has now been out since around 5 pm last night, so it is out for good!! They were keeping a very close eye on her last night because she sounded pretty wheezy and was very agitated, but she settled down and pulled through once again! Last night we kept trying to give her her binky but she didn't want anything to do with something being in her mouth again, but today she has remembered what it is and how much she loves it. I don't think it's been out of her mouth all day. She finally got to eat again, although it's going pretty slow right now. She went without eating from yesterday morning at 6 a.m. until about 11 a.m. today.. Terrible, I know. But she was soo good about it. She is always good about everything she has to go through. She's made up of something very special.
They also took out her catheter..so now I get to change her diapers! She's come off a couple of her meds and they are coming down on the others. By tomorrow she will hopefully be able to get off most of her IV meds and switch to oral meds so that her central line can come out of her neck. Since it is a central line (close to her heart), if she were to get an infection in it it would be bad so they like to get it out as soon as possible. I'm obsessed with seeing things get taken off her....It's one step closer to holding her again! Once the breathing tube went so did two other large machines and monitors, including the one with the dumb sticker that was on her entire forehead. I was so excited to see that go! Now I can see her entire beautiful face again. She just looks wonderful today.
So now's the time that really gets busy, as if it hasn't been busy enough. It gets harder and harder to keep her happy when she is fully awake but can't get off her bed that she has already been laying on for 10 days. At least we have a TV in here and that will occupy some of her day. This is also the time that everything get's better too. They seem to improve so quickly after the tube is out and I get to have my little girl back. I'm so excited for her to be stronger and feel better I can hardly stand it! I'm so happy that she'll be able to experience life as a normal baby and stay far away from the ICU. I can't wait to get home and practice eating, grabbing, and rolling becuase she was getting sooo close! I'm just so excited for her to finally just be a baby for awhile.
She has had a great morning and is resting very comfortably, thanks to the food in her tummy now. She is getting an echo right now and she hasn't even budged for it.
My mom left today...:( Always sad for me since she is soo much help. I have the two most incredible, selfless mothers that have been constantly 'on duty' for an entire week and a half now. I could NOT have done this past 6 months without them. It always amazes me how much work my two kids are! They manage to complelety wear out 4 adults every day. One of them is a little high maintenance though... just a little. She is worth it all though..