Sleep over at St. Joes
Dad here... Avery and I both spent the night at the hospital. I won't complain because Avery does it every night and doesn't. I always tell Avery that someone is going to creates a Marvel super hero character after her. She is amazing!
Right after Avery posted last night, Bela's oxygen saturations dropped and she clamped against the resperator. She turned really blue and they had to override the resperator and manually give her breathes. My mom and brother were here to experience a glimpse of the anxiety that we go through. It was relatively mild compared to other times, but nontheless it stressed us all out. She had two more of those episodes during the night. Aside from the fact that we constantly worry about Bela, sleeping here is not very accomodating. I would like to compare it to sleeping through the night with your alarm clock going off every five minutes expect that the alarm is associated to your daughter and you can't just press snooze and go back to sleep without making sure she is ok. Bela is calm at the moment and holding mommy's finger.
Right after Avery posted last night, Bela's oxygen saturations dropped and she clamped against the resperator. She turned really blue and they had to override the resperator and manually give her breathes. My mom and brother were here to experience a glimpse of the anxiety that we go through. It was relatively mild compared to other times, but nontheless it stressed us all out. She had two more of those episodes during the night. Aside from the fact that we constantly worry about Bela, sleeping here is not very accomodating. I would like to compare it to sleeping through the night with your alarm clock going off every five minutes expect that the alarm is associated to your daughter and you can't just press snooze and go back to sleep without making sure she is ok. Bela is calm at the moment and holding mommy's finger.
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Again, I know that you dont know who i am. I heard about Bela's story through a co-worker of mine Susan Hull. I just want to say that you guys are truly amazing parents. I am sure that if Bela could talk right now. That she would say, " I love my parnts and would never ask for anyone different." The both of you are execellent roll models to anyone reading these post. Avery in one of her previous post stated, "I want Bela to read this later." So i wanted to right something for her. Now i will gear my messege more to Bela.
Dear Princess Bela,
You are an amazing little angel. You are stong and can pull through this. I know this may be a tough obstical for you. But please just know that all of your family and friends are rooting for you. I am sure that Benson cant wait to get his little sister home to play. I as an outsider are praying for you everyday. Get well soon.
Suzie
Love you, Keisa