Bela Girl

I love this girl {picture taken back in July by Ang }

There is one happy, snuggled up little girl in her crib right now. We've been home a couple hours now and the minute we laid her in her crib she fell asleep. I keep checking on her and she seems very comfortable. She's so glad to be home. She'll need a few days to recover and some good rest. I'm ready for my turn to crash now. I think I slept maybe an hour all together last night. Bela had a rough night and wanted mommy to 'hold you' all night. I wish yesterday morning I could've just had a tiny glimpse of her home sleeping in her crib tonight so that I could've spared myself some of the worrying of yesterday, (was that really just yesterday?) but unfortunatley that's not part of the deal. You have to go thru all the worrying because it's all such an unknown until it's over. I said this during her 2 day g-tube surgery stay, and I'm saying it again, I honestly have NO CLUE how I did that for weeks and weeks that turned into months. ...

The relief I feel when she is back in my view is indescribable. Even though she's a little beat up, wearing an oxygen mask, and bandaged in a few places, she's done with the hard part and on her way to recovering. She came back about an hour ago, a couple hours less that planned. :) After taking measurments they decided it best to balloon her aorta and were able to stretch it from 7 mm to 10 mm. Ideally it should be 14 mm so they may have to repeat this whole process in a few months from now to stretch it a little more. And then at her next surgery, when she is opened up, they'll most likely have to take the whole narrowed 'chunk' out and rebuild it using a piece of a vein from her neck. Sound complicated? Yeah.., we'll deal with that when we get there. And that's just the aorta! That's on top of the already complicated surgery. The doc seemed pleased to get it from 7mm to 10 mm today so we'll take it. Should help alleviate some of the pres...

Bela is finally in the cath lab. She woke up this morning with yellow snot dried all over her face. I seriously couldn't believe it. The morning of her cath... of course. So I texted our NP and still came, knowing there was the possibility we'd be sent home. It took three hours to decide, but finally her cardiologist and anethesiologist decided she was okay to go ahead with it. It has made the nervous pit in my stomach that much worse. I don't know why that had to happen today. She hasn't been sick in so long. When we were given the go ahead they asked us if we wanted to walk her into the cath lab. I didn't know if I wanted to or not, but figured if I could be with her that much longer I'd go ahead and do it. I had no idea what I was agreeing to. When we got in there they had the gas mask ready and had me hold it on her while I was holding her. I think it might've been one of the worst experiences I've had so far in this place. Seriuosly, I w...

The week of the 11th has come.. darn it. Bela's cath is on Wednesday. When everyone else will be sending their kids off to their first day of school, we'll be sending her off to the cath lab. Today I was so grateful for church. I'm grateful to start the week off with it every week, but especially this week. Although I tried to make a comment in Relief Society about Wednesday, I'm not sure anything really came across. I wasn't even emotional thinking about what I'd say, but as soon as I started to talk, I couldn't get anything out. I think it was the first time I'd actually put it into words to anyone but Tanner. All the sudden I felt so scared. And then there were so many great friends that wanted to know more about it, what was going on, how they could help, what they could do for us. That is why I love my church. There is such a strong sisterhood of women ready to serve and help wherever needed. It was nice to get it out there. To know that...

Yep that's right! We are very excited to announce that #3 is on it's way!