Thursday, March 8, 2012

Fontan 7

Finally something good for Bela! Can't tell you how good it felt to be able to tell her YES when she asked for a drink! She's been back from getting her PICC line for about 2 hours and has just been drinking and drinking the last hour. She keeps saying, a little more mommy.. So sweet. She's resting very peacefully now. Sigh.. The day is over. Now we can finally feed her tomorrow and let her be aw...ake. She might even get to take a wagon ride to the playroom if she is up to it. Thank you for your comments and prayers today...I can't tell you what they meant to me. I really can't. It was the toughest day yet, and i hope the toughest day she'll have. I think she is done with vomiting and the tremors and DONE with being NPO (food witheld). I would be miserable too if I hadn't eaten or drank since sunday. All I could think of was how thirsty I feel after one day of fasting and she had gone 5 and was told she couldn't drink for hours. She was so mad she even hit her daddy a couple times. He's the person she loves most in this world.. She was so upset. So hard.. Positive thoughts for sleep tonight so she's ready for a good day tomorrow! I know it will be.. Loves to you all and thank you for being there for us.


Anonymous said...

I am sorry it has been such a difficult time. Things are looking better now. Here are the words to Brahm's lullabay - for all of you.
Sleep my child and peace attend thee,
All through the night
Guardian angels God will send thee,
All through the night;
Soft the drowsy hours are creeping,
Hill and vale in slumber sleeping,
I my loved ones' watch am keeping,
All through the night.
Angels watching, e'er around thee,
All through the night
Midnight slumber close surround thee,
All through the night
Soft the drowsy hours are creeping,
Hill and vale in slumber sleeping
I my loved ones' watch am keeping,
All through the night

While the moon her watch is keeping,
All through the night
While the weary world is sleeping,
All through the night
O'er thy spirit gently stealing,
Visions of delight revealing
Breathes a pure and holy feeling,
All through the night.

Anonymous said...

(Last post from Lila)

Chris and Debbie said...

We must think of you a hundred times a day. Keeping you all in our prayers. Hoping for "angels to be round about you to bear you up."
the Wallaces

Auburn said...

I don't even know what to say! I wish I had some comforting words, or that I could take away something for you. I'm glad you have the atonement talk to comfort you, and prayers too! You are amazing, and to read that sweet Bela had to endure not getting her sedation meds, and that you had already forgiven the situation and moved on is so inspiring to me. You and Tanner make me want to be a better person. And that Bela - well she just makes us all want to be like her! Love you guys!

S and K said...

Sooooooo happy that she is doing better! She's a trooper! I can't imagine how thirsty she had to have been!! Hope she does get that wagon ride to the playroom! :) and a really good night's sleep!

mama nels said...

Avery - you, Tanner and Bela have been in our prayers so much. We're praying for a much better day today for you. She is such a sweetheart. Love to you and your family.

Branton Family said...

Avery, I have been praying and will continue to. I think of you all often during the day. Hang in are doing great. Hopefully, you all will be home soon!!!!!

Nancy Brinton said...

I know that it takes great effort to keep us all updated but it is SO appreciated. Our prayers are with you constantly throughout the day. May the Lord continue to sustain you and heal Bela. She is SO special.

Trish said...

Bela has been in my thoughts a lot this week. I'm sorry that she had such a hard day yesterday- which of course makes for a hard day all around. You are absolutely in my prayers, with every thought, a prayer is prayed. Hopes and prayers for more and more good days... all the way to great days and home days.