Saturday, March 8, 2008

8 days old and doing great!!

Sorry for the delay in getting a post up. There are not enought hours in the days to get everything done that I'd like to.. She was kept very comfortable last night but today she has been a little more agitated and seems to be a little uncomforable. It breaks my heart. Her little face scrunches up to cry but she can't get any sound out because of the breathing tube down her throat so she trys to cry but can't. They just gave her another dose of morphine, so she should be feeling more comfortable soon. Her vitals have been staying right where they should be. There's been a couple times when they've dropped or raised, but they go right back pretty quickly. No big scares yet. She is still beating all the odds and exceeding doctors expectations of her. She got her chest tube out this morning. One less tube coming out of her! Her scar already looks like it's beginning to heal nicely. It's hard to believe looking at her that she just had open heart surgery yesterday. She really looks great. Her swelling has been very minimal which is very good. The ICU doc just came in and said they are trying to work towards getting her breathing tube out tomorrow! that would be so wonderful since we have never heard her cry yet. That will be a beautiful sound! I'm so proud of her for being so strong. I can't believe all that she has gone through in 8 days.

Here's Bela on her blessing day..


Bela opening her eyes a little for Daddy.



Bela post op. This was right after she came back from surgery to her room.



This is Bela getting an EKG (if you can see her under it all), testing the rythm of her heartbeats. It looks worse than it really is. She gets on of these every day.


They're running a million tests and watching her very closely...I know I have said this many times but Bela really is getting the best care possible. We've been so happy with the nurses and doctors and they are always right on top of things. It really was a huge blessing for Bela to be able to get the Hybrid procedure...she probably would not be doing as good if she'd had the Norwood procedure. We know they were inspired to know what was best for her. There are only 8 institutions nationwide that even do that procedure and St. Joe's just happened to be one. We also were blessed to have the surgeon from Chicago who specialized in that particular procedure to be here for her surgery. Everything has fallen into place and we just have no doubts whatsoever that it was all supposed to be this way. The Lord is in charge and is guiding and directing everything and we've all been unbelievable blessed.
I'm so glad to be passed that huge hurdle. I'm so glad that now we start working towards getting her well enough to come home. Before her surgery it was all just a waiting game. She has made it through beautifully and as long as everything stays the same we are hopefully on the road to recovery. Her first year of life will be mostly spent in the hospital but we know that and are prepared to do that for her. Pretty soon she'll come out of her heavy sedation and we'll be able to talk to her and love on her. I can't wait!

10 comments:

mandy said...

We are so happy to hear she's done so well after surgery. I check your blog daily for updates and each one is so positive. Carter and Lexie have been blessing Benson's baby sister Bela in their prayers each night. Thanks for all the pictures and updates and the examples you are.
Trent and Mandy

Dana said...

Bela is such an amazing little girl and I am so happy that she is doing so well. She is absolutely beautiful!! The pictures of her on her blessing day and opening her eyes for Tanner are priceless! You are so strong and I love to read your updates - what an amazing example of faith you are!

Dana said...
This comment has been removed by the author.
La said...

all i can say is hooray. i am so happy bela is doing so well. i keep praying for her to stay strong and keep fighting. i want to see her again!! we love you 4 so much!!

Jen said...

Thanks for the udpate Avery -- What an amazing few days! We will continue to pray for all of you...especially Bela. Mason has been checking on Bela's progress through all of this --Remember how excited he was in Primary to find out you were pregnant (he wasn't too sure about the girl thing...but what do you expect from a house full of boys!) I think he was the most proud to find out the news before the RS Pres.

Hang in there...The updates and pictures are so meaningful to all of us. Thank you for sharing so much with those of us who love you and are praying for your family. The Lord continues to watch over your little girl!

Jules said...

Your posts and pictures bring back a flood of memories of when our Hannah had heart surgery. She looks so much like Hannah did a a newborn. Blonde, fair skinned, and DARLING!!! From the scrunchy face with no sound when she cries, to the EKG's and chest tubes, etc., it brings tears to my eyes to see what you're going through. I've been there!!! And while I know we have another heart surgery in Hannah's future, she is a healthy, vibrant, almost 6 year old girl who lights up every room she enters. Your Bela is a chosen little girl and will do the same... she will fight through this and make it!!! And you will too!
I love reading your updates, you are so positive. I am so glad your family is there and supporting you. We will continue to pray for healing for Bela and comfort for your family. Get some rest mommy! Give her kisses for us!

Matt and Jennae Porter said...

Hooray Bela! you are such a trooper! I love the pictures of her post-op when she doesn't have the breathing tube in because you can see how cute her little mouth and lips are. Hopefully the tube will be out for good soon so we can see more of those cute little lips!

Raechal said...

avery, I've been following your situation for a little while and just found your blog. You are being so brave and strong for your family and your little Bela. I admire your courage so much! It sounds like she's doing great! and I am just thrilled to hear it! I hope she continues to improve and can come home with you soon! I'll be praying for your whole family.
Raechal (Owens) Carron Santa Margraita Stake

kbhull said...

Tan and Avery,
We are so happy that it is all going so well for your family. I can't read your blog without totally sobing but I check it all the time to see how things are. She is so beautiful and we are amazed by the faith and courage you all have. Know your familyis in our thoughts and prayer.
Billy and Kristy Hull

Krista said...

Wow. Bela is an amazing little person. These pictures really bring it all home for me and I just cannot imagine the faith and strength you all have to be so positive and just absolutely wonderful. We are so glad to see how well she is doing. Our prayers and thoughts are with you as always. Does this mean that Benson can come over to play sometime soon? :) xo...