The last couple days and nights have been wonderful, but I have to admit a little frustrating as well. Yes, I have been able to start trying to nurse Bela, but that is what it has been...trying. Since she went so long without nursing, she's having to re-learn how to do it. Once in awhile she'll get a good latch, but then she tires out too quickly, so it's been hard to get her to take in much milk that way. I get to try nursing every 6 hours and in between she gets a bottle feeding. Whatever she dosn't get at each feeding she gets through her nose and it usually ends up being most of her full feeding. :( She has also been spitting up quite a bit of her feedings. This morning she had actually thrown up her nose tube out of her mouth so they had to put a new one in and she didn't enjoy that.. She needs to start keeping her food down to gain weight, and also for us to be able to take her home. The last few days she has been losing a little weight each day, which has been making us a little nervous, but this morning she was up a little bit again which was good news. If she dosn't gain they'll not let me nurse anymore and go back to all tube feedings. It's so hard for her to get the suck swallow thing down, and it's so hard for her to get in a full feeding without tiring herself out. This will definatley be a huge battle for Bela. We're working hard on it and she's doing a little better each time. I'll be staying with her around the clock now so that we can work at it together, and I know she'll get it eventually. She's such a strong little girl. I'm just extremely grateful that I am able to try nursing her at all.
Everything else is still looking really good. Her heart is doing just what it's supposed to for now. Her stats all look great, and she's still off all meds. She gets an antibiotic twice a day for a sore that might be infected from one of her IV sites but that is it. She has long periods where she's totally awake and checking out the world and we're loving it. Her voice is also starting to come back little by little...it's much stronger now and she's starting to actually keep me up at night with it! It's actually really nice to be 'up all night with the baby'. Life is so great and we are soo blessed.