Bela is doing wonderfully. She had a great, uneventful night. Uneventful is exactly what we want from her right now.. She rested up good for today. My milked was upped again yesterday!! Yeah! She has gotten two more treatments of a dieretic (not sure of the spelling--keeps her fluid retention and swelling down) to make sure she is nice and dry for her surgery. She is exceeding expectations and we could not be more grateful for that. She is definatley receiving the divine help that we have been praying so hard for. Grace has proven so far to be the perfect name for her. THe bible dictionary defines grace as, 'divine means of help or strength, given through the bounteous mercy and love of Jesus Christ.' We know that she will continue to be in His loving hands.
Bela got a name and a blessing last night from her Daddy. It was beautiful and perfect in every way. I'm so proud of Tanner and how he has been leading our family through this. He is here with his little girl as much as he can be and she is totally responsive to his voice. He says she has stolen his heart. We had our family here with us for the blessing, as well as Bishop Bean and his wife, and it was a very sweet experience for us. I will post pictures of it as soon as my mom gets here with my camera..
We are here here with Bela awaiting her surgery right now. There is another surgery going on right now and as soon as they're done with that one they will come get her. Im feeling a little nervous, but at the same time, I know she needs this to live so I'm anxious to take on this next step. I can't believe that its here upon us, we've been waiting for this day for a long time. Thank you for all your prayers and fasting..we definatly feel uplifted by them. I feel positive and hopeful. I will post as soon as we know anything. The surgery should take 3-4 hours, then another hour of getting her stabalized again in her room until we can come back and be with her.
I can't get enough of her. I don't think the pictures do her justice...she is so adorable and sweet. I got to hold her again last night for awhile. She was very peaceful all bundled up in her blankies in my arms. Those moments give me the boost I need right now. I'm so in love with my little girl..
We just heard of the birth of the daughter of some friends of ours that also was born with chromosome abnormalities and HLHS. THey did not know it was HLHS until after she was born. I hope they don't mind me saying this on our blog, but please add them to your prayers. They named her Eden Grace and she was born on the same day as our Bela Grace (leap day). THey must've been best friends before they came to earth and decided to take on their challenges of life together. Her surgery is scheduled for Monday. We are praying for you...