I don't really have much time to write this, but I just wanted to get a post up letting everyone know what is going on. Last night Bela went into heart failure twice. They have gotten her stabablized now. We noticed Bela was very weak yesterday, not alert, and had very bad color. She all the sudden started to looked pale and gray. We hooked her up to her pulse ox and her saturations were in the 50's. I wanted to throw up. We have never seen them go below 75. We called her cardiologist and he stayed on the phone with us as we tried to wake her up and see if her sats would come up at all. They began dropping into the 40's. They got to 38, she was completley blue. I thought I might be losing her. We hung up the phone, Tanner gave her a very quick blessing that she would make it to the hospital and got in the car. I sat in the backseat with her, held her hand and kept telling her to breathe baby, breathe. She was struggling to breathe, her notstils were flaring and her lungs were pulling in. But a little into the drive she started to look much better. Her breathing calmed down a bit and she didn't look quite as blue. When we got to the ER and got her admitted, they hooked her up to the machines and she was back in the 80's, although her coloring was still pretty grayish blue. Everyone was very surprised to see 80's. (80 is good for Bela, normal sats are in the high 90's-100, just to clarify). We got her up to the Cardiac ICU and the dr. kept saying that she knew her sats looked okay but she was extremely worried about the way Bela looked. She started telling us that she didn't want to wait any longer for her sats to go down, she felt more comfortable just intubating her right then to help her breathe a little better and take some work off of her heart. Just as she was telling us this Bela's sats and heart rate started dropping fast. She yelled that she was coding and everyone who was standing by waiting to intubate her jumped into action. There were 8 drs and nurses in here working on her. It took 2 hours to get her stabalized. Then she started dropping again. They had to give her more manual breaths and she stabalized again after another hour or so. We still don't really know what caused it to come on so sudden, but they think it may be due to a leaking tricuspid valve. She has too much fluid in her lungs and heart and they are having a very difficult time getting it to stay off. They get her stabalized for awhile, then her sats start to drop some again. Nothing like they did last night, she's much more stable now, but still not in the clear. We will not know much more until all her tests and cultures come back and she goes into the cath lab over the next couple days.
Everything happened so quickly and we got her in without a second to spare. I have no doubt that the Lord sustained her heart until she got here and could receive the care she needed. We will update when we know more.
Everything happened so quickly and we got her in without a second to spare. I have no doubt that the Lord sustained her heart until she got here and could receive the care she needed. We will update when we know more.
Comments
Keisa
It is scary to hear the words "heart failure" as I've heard them many times. Continue to be strong and know that Heavenly Father is watching over you!
Bela has proved to overcome the odds thus far!! PRAYERS FOR BELA!
Best wishes,
Amy (mom to Daniel, HLHS)
Pennsylvania