Today is the day

In a couple hours we'll take Bel in for her cath...I'm trying not to, but I keep thinking that this might be our last morning at home for a long time. We've been told that it's very likely we'll just stay in the ICU until her surgery. We don't know much right now, the cath is supposed to give us some answers and direction, but the surgery will most likely be anywhere from a few days from today to 3 weeks. I can't believe it's all here already..
Please, for those of you who read this today, say a little prayer for her. Although Cath's are not a huge deal compared to what she's been through and will go through, anything for Bela can be hard on her.
Thank you for your prayers, your words of comfort and support, and for following Bela's journey with us. I will update more when we know..

Comments

Anonymous said…
I wish you all the best. Peace be with you and sweet little Bela.
August 12, 2008 at 9:03 AM
Candice said…
We will say an extra prayer for Bella today and keep her in our prayers as always.
August 12, 2008 at 9:04 AM
Tammy said…
best of luck to you guys from the Bennetts in utah. I am sure it is going to be a long hard day. Thankfully benson's surgery went well also. We are praying for you all.
August 12, 2008 at 9:21 AM
Anonymous said…
Jojo and mercy

Bela will live to be a testament that there is a God who is still in the Healing business. Jesus We thank You for the good report we will get from the milnis’ of Bela’s health report. Lord your report says we are healed, your report says we are free and your says we have Victory. We pray for Strength Father for the Milnis’ and thank you for lives that will be changed because of your workmanship and Bela’s healing in the mighty name of Jesus. Amen
August 12, 2008 at 10:05 AM
Branton Family said…
Avery, I am praying today and will continue until Bela is home with you again. Stay strong and keep looking for the little blessings God will send you along the way. Love, Amy
August 12, 2008 at 10:26 AM
The Simmons Family said…
Prayers for Bela!!! I know Caths are supposed to be easier... but I just hate them! Our first one was at around 3months, they found Owen's heart failing, they bumped up his Glenn and we were in ICU for 30 days... :(.

I pray that Belas' will go much, much smoother. he idea of surgery is frigtening but it is SOOOO nice to have it done and out of the way. Then Bela can just be a baby for a LONG while before any more surgeries come up.

PRAYERS and HUGS from your heart friends in Gilbert!!!

Andrea
August 12, 2008 at 11:10 AM
Andrea said…
I'm saying prayers for little Bela and for all of you today and especially these next few weeks. Good luck and we hope everything goes well. She is one strong little girl and has touched so many lives, including mine.
love,
Andrea
August 12, 2008 at 12:01 PM
Ryan and Laura said…
Hi Avery- my name is Laura Crooks- maiden Denos. I feel like I shoudld leave you a comment since I met your sister on Sunday. I am from your home stake (RSM) but I live in Las Vegas now and just met your sister, Erin, in our new ward. I have been following your story through my dad- who was a bishop under your dad as stake pres- when this all started. I have a 14 month old little boy so your situation has been very touching. All I can say is that you seem so strong in your posts and your family must be truly amazing to have this challenge placed in your "plan". Especially at this time, know your little girl is being prayed for by one more (near) stranger.
August 12, 2008 at 12:14 PM
The Silly Nilly Family said…
Okay, I will say a prayer for her and all of you. Lots of love.
August 12, 2008 at 2:43 PM
thegoulds said…
I wish you guys the best and will keep Bela in my prayers. I am so sorry that Benson had to have a surgery too!
August 12, 2008 at 3:19 PM
Anonymous said…
You're good Girt. Love you so much, mom.
August 12, 2008 at 3:58 PM
Lindsay Brummer said…
we have been thinking about you guys and this day for a while and we pray for you and beautiful little kiddos.
August 12, 2008 at 3:59 PM
The Ridgway Family said…
I have been thinking of Bela and you as well Avery all day. I pray constantly that all will go smoothly in her cath and they will have a clear direction for surgery. I know how scary upcoming surgery can be, but you will be able to breath so much easier when it is all over. We love you!

Keisa
August 12, 2008 at 4:09 PM
Erin said…
As always our prayers and thoughts are with you guys. It was great to visit yesterday and I hope you got some good answers for the future for Bela from Sherrine. Hang in there and we will definitely check in and see what we can do.
August 12, 2008 at 4:11 PM
Kacy said…
From one heart mom to another, I wish you peace tonight. I will be praying for your sweet baby girl. She is beautiful! I came upon your blog from "Annabelle's mom," a great heart mom friend of mine. My daughter, Mary Clare also has HLHS and has endured her first two surgeries. What miracles these babies are! Will be checking in on you!
Love, Kerri Pennington
www.babypennington.com
August 12, 2008 at 7:28 PM
S and K said…
You've been in my thoughts and prayers all day. I hope things went well and I can't wait for an update! Hang in there!!!
August 12, 2008 at 8:37 PM
The O'Neils said…
You are always in our prayers! If you are needing somewhere for Benson he is always welcome here. Harrison would love to have him come and play!
August 12, 2008 at 9:13 PM
Pepper Lovin! said…
HI YOu don't know me but I went to High school with Tanner. I will pray for you little ones. good luck.

rachel (bradshaw) bostock
August 13, 2008 at 12:59 AM
Post a Comment

Popular posts from this blog

Transplant 2- Honoring her donor, and her Aunt Ju

Image
Early in the morning on October 23rd, Tanner got a phone call that his sister, Julie, just a year and half older than him, had passed away. My sweet mother in law had to receive this devastating news from Bela's hospital room. Although Bela was unaware of all of it, at the same time they were helping my mother in law just outside her room in the hall, Bela's heart rate shot up to 180 and her rhythm went crazy for about 3 hours until they finally got it under control. We still don't really know why, most likely her heart telling us it was nearing its end. In the late hours of that very same day we got the call we had waited for for 11 months. A match had been found for Bela. Tanner had already decided he wanted to sleep there with Bela that night.  As hard as this hospital stay was becoming, there was a tangible peace being there with her in that room.  When he was woken up with the news that night, he stood in the hallway outside her room and wept as the flood of emotions o...
Read more

3 weeks out and doing great!

Image
Bela has been doing pretty darn good. I'm amazed by her.. as usual. She dosn't want to be held back any longer! She begs me to go to the park, got to the store, get back to anything normal. We're taking it slow, but she's been out to the park a couple times when it's been not too busy and she's so happy to be sitting in the sand with her shovel in hand. Sometimes it's like she didn't skip a beat. She has times still though where she seems tired, or grumpy, or like something bothers her but she just can't quite tell what it is. But overall, oh my gosh! 3 weeks post-op and she's a rockstar! I'm just so darn proud of her, for doing something so hard and for coming out of it so well. She tells everyone that she just got her heart fixed and sometimes even shows them. I'm never quite sure how to react when she pulls her shirt right up. It's like she's actually almost proud of it, as she should be, but I cannot understand how...
Read more

First transplant post

Image
This space used to be very healing for me. I wish I never would've stopped documenting here...I love knowing the first 5 or so years of Bela's life were well documented. But as I sit here with the familiar view of her hospital bed and sounds of beeping monitors, it feels almost necessary for me to write here again. Bela has had 12 incredible years of living life since my last post on here.  We were getting really comfortable with our cardiology appointments every 4-6 months, endocrinology every 3-4,  bloodwork every couple months, and occasional MRIs, procedures, or trips to the cath lab. Life has been full and so good. She's traveled a ton, ate a lot of good food, hung with friends, participated in theater, and found so much joy in her simple but rich life. We also had two more kids in that time.. more chaos and more love.  I don't know if anyone will still look for and find this blog looking for hope for HLHS, but I hope so.  We've now been inpatient listed for he...
Read more