The ups and downs continue, but for the last 20 hours or so she's been a little angel. She hasn't been naughty at all... I told her that even though she dosn't feel good and she might be angry and confused, it's very naughty to just hold your breath until you turn blue. I really hope she listened and is done with that.
They've come down some on her sedation and every now and then she'll open her eyes and look around for a few minutes before drifting off back to sleep. She isn't getting as angry or agitated as she was before when they do their assessments.. Please, please pray that she will continue like that instead of getting so mad she refuses to breathe and has more of her little episodes. They said if she has a good night tonight, they can start weaning some of her ventilator settings and GET THAT TUBE OUT!! I'm so ready for it to be gone beacuse I miss my little girl so much! I miss seeing her eyes and her smile and seeing her kick with excitement. It will be a very slow weaning process I'm sure, but anything is better than nothing! I think she really scared the docs (and her mommy) so no one has wanted to push her too much.
As you can tell from the picture, she looks TONS better today. She has gotten off most of the fluid and so her face looks back to normal almost. She dosn't seem to be in as much pain today, and I think we've rounded a corner and gotten past the worst.
Everyday that she makes some progress and looks a little better is such a blessing, and we are overwhelmed with gratitude and happiness that she is fighting so strong and is still here. Today I feel like shouting, SHE'S DOING IT!! SHE'S OVERCOMING EVERYTHING THAT WAS SUPPOSED TO GET THE BEST OF HER! I know that it is the hand of God blessing her little body with His power. He has never left her, or us, and has continually strengthened us all with His love. I'm honored to be her mommy and to be a part of this miracle from above.
Comments
Yeah! I`m so happy she is making progress. You and your family have been in my thoughts and prayers so much this week. I will continue.....God bless you. Karla Carvajal (Rang)
-Rachel Wallace
Love, Suzie
Our kids check on her every day whan they come home for school , to se how things are going. Bella has strenthen their faith so much.
hugs
Cathey's
Andrea
Many heart hugs~ Rebecca
i too have been following your sweet familys blog for a little while now and i have yet to ever leave a comment. i just wanted to let you know you are amazing, your strength and testimony strengthen me, and what a amazing miracle you have. your daughter is beautiful and we keep her in our familys prayers. lauren(andrews)
You are so strong. You are such an amazing example of what a parent and a person should be. Your humble gratitude for Heavenly Fathers blessings has truly touched me. Again I can't imagine how difficult your situation must be. I will keep on praying for all of you. I am so glad to hear that she is doing better.
I have followed your story for quite some time & finally had to respond. First & foremost, you are one of the strongest set of parents that I have come accross. Although we havent met in person, I feel like I have known you as I have prayed in your behalf and watched this little Angel experience both heartache, pain & miracles.
I can only imagine the experiences that you have been faced with & many more that lie ahead, however what I can tell you...is that I know the Lord has a plan for each of His children, and He loves us! He knows our limits, he knows our pains, our heartaches...He knows YOU! Perhaps you have had many say that they understand what you are going through day to day...but most truly dont understand unless they have walked those shoes. I understand. Our daughter is 9 months now, and was in the hospital for about an 10-12 week time. She was very sick & on atleast 4-5 occasions, we didnt know if she was going to pull through. I spent night after night, leaving my 3 other children home. It was painful, the days were long, my body tired...only to see my child improve, then worsen...and so on....
All-in-all, I found comfort in knowing that she was my little Angel & that we are an Eternal family. I can sit here and just imagine the seconds go by, the minutes....and then the hours, and I know that it seems forever. I will pray for your sweet family, for her to have strength & for the Lord to carry her through as he has many times before.
Many are praying in your behalf. I have been deeply touched by this story & I will continue to follow and pray for a miracle. Life is a journey & sometimes experiences that are difficult to overcome...are the challenges in life that bring us closer to our Savior.
With much Love,
Tonya
~Stephanie(mommy to Braeden HLHS)
http://braedensheartjourney.blogspot.com/