This space used to be very healing for me. I wish I never would've stopped documenting here...I love knowing the first 5 or so years of Bela's life were well documented. But as I sit here with the familiar view of her hospital bed and sounds of beeping monitors, it feels almost necessary for me to write here again. Bela has had 12 incredible years of living life since my last post on here. We were getting really comfortable with our cardiology appointments every 4-6 months, endocrinology every 3-4, bloodwork every couple months, and occasional MRIs, procedures, or trips to the cath lab. Life has been full and so good. She's traveled a ton, ate a lot of good food, hung with friends, participated in theater, and found so much joy in her simple but rich life. We also had two more kids in that time.. more chaos and more love. I don't know if anyone will still look for and find this blog looking for hope for HLHS, but I hope so. We've now been inpatient listed for he...
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How's Belabug doing? I might be calling you with Gtube questions soon.. yikes. I don't know why I"m so nervous for that. September.. at Stanford, he will get tubed. I have a meeting with Dr Graziano because she's going to do all of Owen's followup care. Thanks for the referral to her!! :)
Hope all is well.