Loving our girl..





Comments

shannon davis said…
She is so precious and I am so glad things are going well with her. You are being so strong and I love that you guys sang to her. Keep it up - she knows your voice. My prayers are with all four of you.
March 4, 2008 at 9:30 PM
nicole said…
I am so glad you got to hold your sweet Bela! Those photos are beautiful.
March 4, 2008 at 9:43 PM
Kathy said…
She is so beautiful and so precious. :) You guys are in my thoughts.
March 5, 2008 at 4:25 AM
Chelsea said…
Thanks for sharing those great pictures with us. I'm so glad you guys got to finally hold her! My kids ask about Bela everyday and never forget her in their prayers. They love looking at your blog. Thanks for keeping us posted. Love you guys!!
March 5, 2008 at 7:39 AM
Sally Jensen Interiors said…
Precious little girl. I'm so glad you guys got to hold her. I love how she gets to snuggle stuffed animals.
March 5, 2008 at 8:52 AM
Lisa said…
Avery, these pictures are amazing, and Bela is such a sweet little thing. I will keep your family in my prayers!
March 5, 2008 at 10:18 AM
ashley said…
bela is adorable! and what a cutie with that blond hair. i was so happy to read that things have gone so well so far.
your amazing. that beautiful little one will be in my prayers and i hope that things go as they should on friday.
March 5, 2008 at 12:03 PM
Dana said…
These photos are adorable and priceless. We are praying for all to go great on Friday. Miss you guys.
March 5, 2008 at 1:04 PM
Erin said…
What a beautiful little girl!! We wanted you guys to know we have been thinking of you and are so glad your little girl has arrived. How wonderful to have been able to finally hold such a sweet spirit, she is perfect. Please know you are in our family's prayers daily. Your family is certainly an amazing example to all, thank you for sharing this experience with us. Hang in there and we would love to have Benson come and play!
The Muhlesteins
March 5, 2008 at 1:53 PM
Dallas and Krista said…
So glad you got to give her snuggles and loves. I am sure that she can feel every ounce of love pouring out of you both. Love and prayers always... xo
March 5, 2008 at 2:36 PM
Post a Comment

Popular posts from this blog

Transplant 2- Honoring her donor, and her Aunt Ju

Image
Early in the morning on October 23rd, Tanner got a phone call that his sister, Julie, just a year and half older than him, had passed away. My sweet mother in law had to receive this devastating news from Bela's hospital room. Although Bela was unaware of all of it, at the same time they were helping my mother in law just outside her room in the hall, Bela's heart rate shot up to 180 and her rhythm went crazy for about 3 hours until they finally got it under control. We still don't really know why, most likely her heart telling us it was nearing its end. In the late hours of that very same day we got the call we had waited for for 11 months. A match had been found for Bela. Tanner had already decided he wanted to sleep there with Bela that night.  As hard as this hospital stay was becoming, there was a tangible peace being there with her in that room.  When he was woken up with the news that night, he stood in the hallway outside her room and wept as the flood of emotions o...
Read more

3 weeks out and doing great!

Image
Bela has been doing pretty darn good. I'm amazed by her.. as usual. She dosn't want to be held back any longer! She begs me to go to the park, got to the store, get back to anything normal. We're taking it slow, but she's been out to the park a couple times when it's been not too busy and she's so happy to be sitting in the sand with her shovel in hand. Sometimes it's like she didn't skip a beat. She has times still though where she seems tired, or grumpy, or like something bothers her but she just can't quite tell what it is. But overall, oh my gosh! 3 weeks post-op and she's a rockstar! I'm just so darn proud of her, for doing something so hard and for coming out of it so well. She tells everyone that she just got her heart fixed and sometimes even shows them. I'm never quite sure how to react when she pulls her shirt right up. It's like she's actually almost proud of it, as she should be, but I cannot understand how...
Read more

First transplant post

Image
This space used to be very healing for me. I wish I never would've stopped documenting here...I love knowing the first 5 or so years of Bela's life were well documented. But as I sit here with the familiar view of her hospital bed and sounds of beeping monitors, it feels almost necessary for me to write here again. Bela has had 12 incredible years of living life since my last post on here.  We were getting really comfortable with our cardiology appointments every 4-6 months, endocrinology every 3-4,  bloodwork every couple months, and occasional MRIs, procedures, or trips to the cath lab. Life has been full and so good. She's traveled a ton, ate a lot of good food, hung with friends, participated in theater, and found so much joy in her simple but rich life. We also had two more kids in that time.. more chaos and more love.  I don't know if anyone will still look for and find this blog looking for hope for HLHS, but I hope so.  We've now been inpatient listed for he...
Read more