I think we were spoiled to have gotten Bela home 3 weeks after she was born and to have had 2 wonderful weeks with her at home. She was doing so well and we were amazed but enjoying every minute of it. There was a piece of me that was wondering if it was all too good to be true and although I never liked to think it, I wondered how long it could last. We were prepared to spend the first few months in the hospital and go through many ups and downs, so I guess this is a little more like what we thought we'd be faced with. With all the challenges that her little body gives her, she's doing remarkably well. She's still doing much better than what was expected of her. It is frusterating that this is something on top of what she already has to go through, but sometimes things are out of our control. What is helping me get through this is that after she came out of surgery the surgeon came and talked to us and he said that he thinks Bela will come out of this stronger. He said that he thinks we'll notice a big change in her, she'll feel better, eat better, and grow better. That is what I will continue to hope and pray for.
She isn't doing as well as they'd hoped she'd be doing however. The procedure this morning took about 3 hours to get the PICC line in her. Her veins are so scarred from being poked so many times that the first vein they tried didn't work. They had to start over and finally got one in her leg. She's been through so much. Her blood pressures last night were dropping too low so they've upped the meds she was already getting and added more meds to help bring them up. She's back on just as many meds as she was after the last surgery. She's also having some irregular heart beats, so they're watching that very closley. She also hasn't been peeing very much so she's very puffy and swollen. they had to up those meds to to get her peeing more. They don't want to push her too quickly so they're going to take things very slow. She may not get off the breathing tube for another day or two. They havn't given her any food yet because she's not showing enough improvements and they don't want to over work her.
I hope that this is just her body trying to heal from the infection and recover from the surgery, and that she is just needing to do that very slowly, but that we will see improvements soon. the dr. has been in her a lot today and it always worries me. Its much better when you don't see too much of them because that means there's nothing to worry about.
I am reassured by the testimony that I have. I know that I have a loving Heavenly Father in charge of everything we go through. That will continue to get us through this. Thank you for your love and prayers. Hopefully I'll have some great news to post next time!
I also wanted to just note that i changed the setting to allow anyone to leave a comment that would like to, not just those that have a google ID. We love your comments, they let us know that people care and you'll never know how much that means to us during all this..