I wish I had better pictures to post.. I like the last pictures of her at home much much better. It has been really hard to see Bela like this today...it feels like we've taken huge steps backwards. But oh well..we must go on. She needed this surgery and so now we get on the road to recovery again. Tomorrow morning she will go back into the OR to have a PIC line put in that will give us a more permanent IV access to give her meds long term. Hopefully with the PIC line put in we can take her home to give her the last month of her antibiotics there. After the procedure tomorrow they'll hopefully take out the ventilator if they continue to see no signs on infection elsewhere. The chest tube should come out too.
Everything went well during the surgery. It took two hours, she tolerated it well and they felt they got it all cleaned out really well. They had to give her some blood, she was very anemic. She was a little uncomfortable when they brought her back but she's been sleeping peacefully most of the afternoon. I just don't want her feeling any pain. That is the hardest part.
They are still very concerned about her size and she is not absorbing all of the nutrition she is getting. When she is well, we have to figure out how to get her absorbing and digesting so she will grow and be better able to fight off infections. The dr. said she was in a very weakened condition and so the infection was able to just take over. I can't wait til the day when she's a 10 pounder!
Comments
We are so sorry for this set back - we'll keep on praying for you all, especially for little Bela! Please let us know what we can do - we'd love to take Benson to the park anytime, if that would help! Or perhaps a fresh loaf of bread? :)
Love, the Gilberts (Donna, Nad, Nadia & Aiden)
We continue to pray for Bela and your family.
Love, Keisa
We just wanted to let you know that we are thinking about you and continually praying for you. We admire you for your strength, your love, and most of all for your faith.
Love, The Mason Family
I wanted to let you know that I have been keeping up with Bela and everything that has been going on with her and I have never left a comment because there are no words that I can say that will take any of this away. What I do know is that your strength and testimony has helped me and I know helps Bela. You are a wonderful mom to both of your children and I wish the best for all of you. You are in my thoughts and prayers.
Love
Melissa (Galt) Bowman
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