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Showing posts from January, 2008
33 weeks...how am I already 33 weeks? Now I start the countdown to her coming rather than counting up to how far along I am. It's both exciting and scary. I have a motherly protection that makes me want to keep her in me where she's safe and whole. As soon as she is born that all ends. Some days are harder than others. I wish we had one issue to deal with. If there were no Turner Syndrome diagnosis, we'd be looking about about an 75% survival rate, a number that sounds great to me. We have no number to hang on or give us any idea what we're looking at. The closer I get, the harder it becomes for me. She is so alive inside me. Everytime I get an ultrasound the first thing the tech says is how active she is. "You've got a real active one here." It makes me both happy and sad. She is almost 4 pounds now, and I can see her face perfectly in the 3D ultrasound. She is perfect. She is measuring at about the 10th percentile mark, such a little perfect

Update!

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Finally a new post...you've all probably stopped checking for updates by now. I've never been one to update too frequently, but lately I know I've been extra terrible at it. It’s weird and a little scary to me that it’s already 2008. I’ve looked forward to 2008 a little apprehensively because it undoudtedly will be full of life changing experiences for us. I'm 31 weeks along now with a baby girl that has been diagnosed with Hypoplastic Left Heart Syndrome, Atrial Septal Defect, and a chromosome abnormality called Turner Syndrome. We found all this out about 2 and a half months ago. It's sort of surreal to be told all that when you think everything is coming along just perfect. Surreal at first, then frightening. It's been a rollercoaster ride so far with lots more ride to come. I was first told I'd probably lose her soon after we found out (around 18 weeks) to being told now that she'll be born and have 3 open heart surgeries with a very unsure outc