Thursday, July 29, 2010

Feeding clinic!

Every summer I forget how hot it really gets here. Then the heat comes and I clearly remember and I wonder how we'll make it though. I love being outside.. I would spend all day outside if I could so it makes me so stir crazy! It's hard to entertain my munchkins all day inside. Bela asks to go to the beach pretty much every day. I wish we could too Bela!

I had my IFSP meeting today, and for the majority of the world who doesn't know what that is, it's a semi annual meeting with a state worker assigned to Bela's case. Today we discussed Bela going to preschool on her 3rd birthday and it blew me away! She would still have to qualify for it, and both her therapist and her case manager didn't think she'd qualify because she isn't actually delayed in any areas. I'm getting her evaluated next month, and if she does qualify she'll start school in February! My baby! I do think it would be very good for her. Especially snack time. :)

In regards to eating, she has come so far. However, her quantities are still so tiny. How do you get a 2 1/2 year old to eat more when they are DONE! She is so dramatic. She'll take 6 bites of something and then say, in an extremely dramatic voice, Mommy, I'm SO full! She just says it to get out of her chair. She'd rather be playing. There are a few things she will usually eat a good amount of: noodles, pizza, mac and cheese, quesadillas, and sweet potato fries. Everything else just gets nibbled on.

BUT...I'm so excited because we have finally gotten our dates and are going to Tucson on August 24th, 25th, and 26th for a 3 day intensive feeding clinic with Marsha Dunn Klein. She's a fabulous feeding therapist who is very hard to get into, because she's so well known and because she spends most of her time traveling to teach others about her program. I am so excited! I hope it gives Bela a big nudge in the right direction. Her home therapist thinks she now has all the skills needed to eat, it's just a matter of increasing how much she is eating and drinking. Which is hard to do! So I think this is a great time to do this more intense program. It's like she's SO close.. she just needs to eat a little more calories at each meal and she could get her tube out!

My little painters... trying to stay busy.
Thanks for checking in with us!

Monday, July 19, 2010

3 weeks

Bela's cath has been scheduled for August 11th at 9 a.m, check in at 7 a.m. I'm so glad we're the first case. It's no fun having her hungry and not be able to explain why I can't feed her.
It's just going to be another couple days that I put myself in the "I have to do this, there is no other choice" mode and get through it. I count my blessings everyday to have had 2 hospital free years. Amazing! She is doing so very great right now, I know she'll just bounce right back, and hopefully have even better heart function after.