This space used to be very healing for me. I wish I never would've stopped documenting here...I love knowing the first 5 or so years of Bela's life were well documented. But as I sit here with the familiar view of her hospital bed and sounds of beeping monitors, it feels almost necessary for me to write here again. Bela has had 12 incredible years of living life since my last post on here. We were getting really comfortable with our cardiology appointments every 4-6 months, endocrinology every 3-4, bloodwork every couple months, and occasional MRIs, procedures, or trips to the cath lab. Life has been full and so good. She's traveled a ton, ate a lot of good food, hung with friends, participated in theater, and found so much joy in her simple but rich life. We also had two more kids in that time.. more chaos and more love. I don't know if anyone will still look for and find this blog looking for hope for HLHS, but I hope so. We've now been inpatient listed for he
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Acabamos de ler a noticia que voces estao em casa e estamos SUPER felizes...
Que bencao maravilhosa!!!
Minha mae manda um grande abra�o pra voces e eu tambem!
Love you all!
Melanie McKay
Just wanted to say hi and let you know you have a New Yorker (former Californian) following your story and praying for you. Thank you for keeping your blog public and keeping us posted.
Rachel Hope
(formally of the Santa Margarita stake)
PS I'm private but if you'd ever like to check out my blog (as if you have the time, right? ;) email me at raehope1@gmail.com. Just wanted to make sure you knew you were welcome since I read yours!
tudo de bom pra vcs... Ela e lindissima, eo Benson e muito fofinho.
abracos
Jim and Carmen Cathey